Scientific Program

Conference Series Ltd invites all the participants across the globe to attend European Autism Congress
VENUE: Panorama Zagreb hotel, Zagreb, Croatia
.

Day 1 :

Keynote Forum

Alok Sharma

NeuroGen Brain and Spine Institute, India

Keynote: Stem cell therapy for Autism Spectrum Disorder

Time : 10:00-10:30

Conference Series Autism 2019 International Conference Keynote Speaker Alok Sharma photo
Biography:

Dr. Alok Sharma is the Director of NeuroGen Brain & Spine Institute, Professor & Head of Department of Neurosurgery, LTMG Hospital & LTM Medical College and Consultant Neurosurgeon at Fortis hospital, Mumbai. He completed MS and M.Ch. from Seth G.S. Medical College and KEM Hospital, Mumbai and subsequently trained at the Karolinska Hospital, Stockholm, Sweden & University of Colorado Health Sciences Center, Denver, USA. He has published 137 scientific papers, authored 16 books, edited 1 book, contributed chapters in 18 books and made over 150 scientific presentations nationally and internationally. He is Founding President of the “Stem Cell Society (India)” and Vice President of International Association of Neurorestoratology (IANR). He is Founder of “The Indian Journal of Stem Cell Therapy”. He has been conferred with numerous awards and honors during his career. He has extensively researched the pathophysiology of various neurodevelopmental disorders and evolved a comprehensive treatment options for the disorders like Autism, Cerebral Palsy and Intellectual disability. He has pioneered the concept of stem cell therapy for incurable neurological disorders. His other areas of special interest are Neuroendoscopy, Psychosurgery, Spinal fixations & Revascularization for cerebral ischemia. 

Abstract:

Stem cell therapy has emerged as a potential therapeutic startegy for Autism spectrum disorder (ASD). It can alter the underlying pathophysiological mechanisms of ASD such as immune dysfunction, hypoperfusion, neuroinflammation, abnormal functioning and connectivity of the brain through the regenerative capabilities and paracrine effects of stem cells.

We studied 32 patients with ASD treated with autologous BMMNCs intrathecal transplantation and multidisciplinary rehabilitation over a period of 26 months, with an average of 12.7 months. Outcome measures used were Indian Scale for Assessment of Autism (ISAA), Functional Independence Measure (FIM) and Clinical Global Impression scale (CGI) and Positron Emission Tomography – Computed tomography (PET – CT) scans. 91% of the patients showed improvements. Post intervention there was a statistically significant improvement in ISAA score (p  < 0.001 ) and CGI scores (p=0.001). Statistically significant improvement was noted in all the domains of ISAA scales. Significant symptmatic improvements were observed in eye contact, hyperactivity, attention and concentration, social behaviour and repetitive motor mannerisms. In 3 children seizures were noted as an adverse event which was managed medically and did not affect the improvements post intervention. We also studied 13 patients with ASD, who showed improved brain metabolism post cellular transplantation on PET – CT scan that corroborated with the clinical findings.

Keynote Forum

Feliciea Jibson

University of Birmigham, UK

Keynote: PAGS Assessments- Profile, Assessment and Goal Setting, Developing skills for learning

Time : 10:30-11:00

Conference Series Autism 2019 International Conference Keynote Speaker Feliciea Jibson photo
Biography:

Feliciea Jibson is an Educational Consultant, member of Society of Education Consultants UK, qualified Teacher with years of experience in teaching autistic children in schools, residential settings, and working directly with parents, carers and families. She has has completed her Masters degree in Autism at University of Birmingham. Before opening Felser Limited in 2018 Felicia worked for 4 years as a Head of Department for learners of 16 to 25 years old with severe learning difficulties and complex needs

Abstract:

Profiling and Goal Setting Assessments (PAGS ): PAGS has been developed for children and young adults between the ages of 5 and 25 who have a mild/moderate learning difficulties, autism, social communication difficulty, pervasive developmental disorder (PDD); conduct disorder, attachment disorder, global developmental delay, mental health difficulties. It is a unique framework based on the concept that children and young people should be assessed developmentally so that it is possible to look at the areas of skill deficit they have as a result of either their schooling or their autism / learning support needs.  It is a skills-based assessment, looking at functional areas so that the child is supported in life.  PAGS promotes a ‘can do’ approach, recognises the uniqueness of each learner and provides the goal setting information for personalized learning progress.The assessment produces a summary of the learner’s strengths and guides to the skills that will need to be developed. The basis for PAGS is linked to cognitive theories of development, from infancy to adulthood, considered in relation to the impact of autism spectrum condition and related neurological conditions on individuals' memories and capacity for learning and generalising. An important bibliography has been researched and applyed into practice, equally listening to and consulting with learners and their families. PAGS Assessments framework is substantially different from the comparatively prescribed options offered by the assessment systems that are used currently. Enables practitioners to facilitate bridging between individuals' skillsets in different settings, be it at school, at home or within the wider community. PAGS has been developed to work alongside any academic curriculum. PAGS is being trialled in a specialist school for children with autism and also with selected individuals. A software programme will be launched early next year and updated regularly.

Keynote Forum

Mallika Banerjee

University of Calcutta(Retd), India

Keynote: Autism – Some clinical features and management

Time : 11:20-11:50

Conference Series Autism 2019 International Conference Keynote Speaker Mallika Banerjee photo
Biography:

Prof (Dr.) Mallika Banerjee has completed her PhD at the age of 28 years from University of Calcutta and after  30 years of service she retired from University and again teaching in IIIT as visiting Professor. She is the director of Pradip: Centre for Autism Management, a non Govt.  Organization for assesment and  reahabilitation of persons with autism.. She has published more than 50 papers in reputed journals and  and two books and several book chapters. She completed six major research  projects  and  has been serving as an expert member on autism in Rehabilitation Council of Govt. Of India.
 

Abstract:

Autistic spectrum disorders are characterized by a triad of impairments affecting the development of social interaction, communication and flexibility. The triad impairment of autism is associated with a narrow, repetitive pattern of interests and activities and a range of other abnormalities of language, movement and behaviour, similar to the lesser manifestations of catatonia. Some individuals have a severe exacerbation of these features in adolescence or adult life like negativism, mutism, withdrawal, stupor, echopraxia, waxy flexibility, and stereotypy. The approach of the present researcher, as revealed through a newly developed ‘Catatonic Scale’, showed that for autism catatonic features appear to be normally distributed along the Autistic Catatonia Scale. It is seen that a good number of total population of ASD (N=500) showed presence of the symptoms in different degree and some of them (12%) may have an alarming notice to render appropriate therapeutic intervention.
 
Like catatonic features mood swing similar to the lesser manifestation of bipolar disorder particularly in the domain of  appetite, sleep, emotional expression, impulsivity and energy may be relatively common among children and adults with autism and 2% -7% among them have mood-swing to the extent of clinical features of bipolar disorder as revealed by the newly developed mood swing scale or persons with ASD..
 
Expressive therapy or creative therapy, particularly Dance/Movement Therapy and Music Therapy are two performance art form which are scientifically used by the researchers in clinical field. The present researcher is going to establish the execution of Music Therapy (MT) and Dance/Movement Therapy (DMT) for the management of the abovesaid two special clinical features of Autism with her series of projects on identification and therapeutic intervention of these two clinical features on autism.

  • Workshop
Speaker
Biography:

Dr. Sreenath Jagannathan completed his Doctor of Osteopathic Medicine Degree at Lake Erie College of Osteopathic Medicine United States between July 2013-July 2017. Through access to mindfulness, meditation, and yoga resources such as the global Art of Living Sudarshana Kriya practice, he is looking for opportunity in medical residency or research. He was noted to be a big inspiration for his residency program for everyone born with autism.

Abstract:

How do we define normal neurologic processing of understanding human society’s values on how respect and success is earned or lost? What do people with autism have that causes them to be viewed very differently to the point people harshly punishingly judge their intentions in behavioral responsibility? A first-hand lifelong account with undiagnosed Asperger’s Syndrome until medical school reveals many deficiencies in institutional systems in how autism is viewed as a disability. Even experienced medical, behavioral, and mental health care professional provider systems do not understand why autism is a disability that cannot be compared with any other disability or disorder. People with autism have varying degrees of disability along with ability. Autism is a difficult diagnosis to understand because neurodevelopmental cognitive programing differences do not cause people to be intentionally bad or not wanting respect to be earned based off of strict rules by society. Mindblindness means a person is very limited in learning behavior/cognitive functioning values through observation. It is complicated to decipher warning signs that one is very limited in being able to understand normal human social-emotional intent plus expectations for conversational contexts other than the fact that people with autism rely on factual written logical structure to understand why unspoken social rules exist. Outside of a school classroom setting where social interactions are structured, real-life social interactions regarding friendship rules being different than parents, authority, and work are severely debilitating because there is no logic as so to why unspoken rules based off of observation exist. Observations do not provide the basis for why rules “logically exist or don’t exist”. Mental health is undertreated and underdiagnosed in people with autism because it is a struggle to identify internal pathological processing neurotypicals are observationally able to mindfully identify and then not act upon them. Yoga, Mindfulness, and Meditation must be a part of identifying and diagnosing mental health along with classification of how “severely someone is suffering because of autism”. Autism can be relatively negligbly causing suffering in one structured social setting, but is extremely noticeable in high stress people social relationship workplaces such group team work business jobs, customer service industries, and most importantly “first responder security social service industries” such as military, police, mental health, and patient-care institutional school/work settings

  • Session on: Autistic Disorders | Autism Tests | Autism Treatment | High Functioning Autism

Session Introduction

Lorene Amet

Autism Treatment Plus, UK

Title: Childhood autism: Immunological and infectious aetiologies of the disorder
Speaker
Biography:

Dr Lorene Amet is trained as a neuroscientist (brain development, brain ischemia and epilepsy) and has worked at Edinburgh, Oxford and Princeton Universities before working as Director of Autism Treatment Plus (ATPlus). ATPLus is a company providing a range of interventions to individuals with autism. Dr Amet also worked in the public sector, planning and implementing through commissioning the Scottish Autism Strategy in two local Scottish authorities.
 
Areas of expertise:
 
• Diagnosis and laboratory testing to identify changes in physiology of people with autism.
• Clinical and nutritional interventions and clinical research trials.
• Development of more sensitive and faster diagnostic and monitoring tools in autism (Eye Tracking technology).
• Special Education in Autism.
• Assisting in the development and access to novel technologies for improving learning and communication of individuals with autism.

Abstract:

Autism is a mosaic disease, it presents in different shapes and colours. Previously thought to be a rare genetic disorder, it has over the last two decades become increasingly prevalent, affecting between 1 in 38 and 1 in 100 children, depending on the geographical location. Identifying the environmental and genetic factors at play is essential to develop effective remedial and preventive intervention strategies. The condition is commonly associated with a range of health problems with the most commonly encountered affecting the immune and digestive systems as well as metabolism, including methylation and sulfuration pathways. These can be identified through appropriate biomedical testing and clinical investigations. Treating these abnormalities can lead to significant improvements in the child’s health, development, social communication skills and behaviour. The presentation will provide an update of the current state of scientific and medical understanding of the condition, and present the range of clinical evidence in support of a convincing paradigm to explain the pathologies and developmental features of the condition.

Nagwa Abdel Meguid

National Research Center, Egypt

Title: Severity-tracking biomarkers for ASD
Speaker
Biography:

Dr Meguid is a professor of human genetics and Former Head of Human Genetics Unit, National Research Center (NRC) in Egypt.  She holds a Ph.D. in Human Genetics, and she is a Senior Geneticist at the Genetics Institute, Pasadena, California; a fellow of Uppsala University, Sweden and Yale Universities.  She was one of five selected scientists to win the outstanding L’Oreal UNESCO Award for women in Science for Africa & Middle East (2002). Awarded with the National State Award of Excellence in Advanced Medical science Technology, 2016. She is the head of the laboratory of research in DNA in genetic behavioral disorders and Founder of autism research study. Jury president L’OREAL-UNESCO Awards. Supervised 50 theses. Has 70 International publications.

Abstract:

ASD develops through a complex set of etiologies that involve environmental, genetic, and immunological factors.  The subjectivity of behavioral diagnosis urges the need for biomarker clinical tests to improve and complement ASD diagnosis.  A wide range of biomarkers to diagnose and indicate the severity of ASD include metabolic and genetic biomarkers. The role of oxidative stress in the etiology of an ASD diagnosis, including increased lipid peroxidation, altered antioxidant enzymes in plasma, mitochondrial dysfunction, and the genetic factors; recently reported,as tracking biomarkers will be discussed. However, it is still premature to consider these genetic variants as true biomarkers for ASD, due to their regional-specific nature. The panel addresses two principle categories; molecular with recent gene discoveries and analyze the transcriptional profile of genes involved in the oxidative stress pathway in autism, in addition to relationship between oxidative stress related blood, urine and nutritional biomarkers. Herein, we will comprehensively review the biomarkers reported in ASD in addition to our own experience. It is important to establish those biomarkers resulting able to help diagnosis and optimize the treatment of ASD.

Speaker
Biography:

Feliciea Jibson is an Educational Consultant, member of Society of Education Consultants UK, qualified Teacher with years of experience in teaching autistic children in schools, residential settings, and working directly with parents, carers and families. She has has completed her Masters degree in Autism at University of Birmingham. Before opening Felser Limited in 2018 Felicia worked for 4 years as a Head of Department for learners of 16 to 25 years old with severe learning difficulties and complex needs.  

Abstract:

Profiling and Goal Setting Assessments (PAGS ): PAGS has been developed for children and young adults between the ages of 5 and 25 who have a mild/moderate learning difficulties, autism, social communication difficulty, pervasive developmental disorder (PDD); conduct disorder, attachment disorder, global developmental delay, mental health difficulties. It is a unique framework based on the concept that children and young people should be assessed developmentally so that it is possible to look at the areas of skill deficit they have as a result of either their schooling or their autism / learning support needs.  It is a skills-based assessment, looking at functional areas so that the child is supported in life.  PAGS promotes a ‘can do’ approach, recognises the uniqueness of each learner and provides the goal setting information for personalized learning progress.The assessment produces a summary of the learner’s strengths and guides to the skills that will need to be developed. The basis for PAGS is linked to cognitive theories of development, from infancy to adulthood, considered in relation to the impact of autism spectrum condition and related neurological conditions on individuals' memories and capacity for learning and generalising. An important bibliography has been researched and applyed into practice, equally listening to and consulting with learners and their families. PAGS Assessments framework is substantially different from the comparatively prescribed options offered by the assessment systems that are used currently. Enables practitioners to facilitate bridging between individuals' skillsets in different settings, be it at school, at home or within the wider community. PAGS has been developed to work alongside any academic curriculum. PAGS is being trialled in a specialist school for children with autism and also with selected individuals. A software programme will be launched early next year and updated regularly.

Alok Sharma

NeuroGen Brain and Spine Institute, India

Title: Neuroimaging in Autism Spectrum
Speaker
Biography:

Dr. Alok Sharma is the Director of NeuroGen Brain & Spine Institute, Professor & Head of Department of Neurosurgery, LTMG Hospital & LTM Medical College and Consultant Neurosurgeon at Fortis hospital, Mumbai. He completed MS and M.Ch. from Seth G.S. Medical College and KEM Hospital, Mumbai and subsequently trained at the Karolinska Hospital, Stockholm, Sweden & University of Colorado Health Sciences Center, Denver, USA. He has published 137 scientific papers, authored 16 books, edited 1 book, contributed chapters in 18 books and made over 150 scientific presentations nationally and internationally. He is Founding President of the “Stem Cell Society (India)” and Vice President of International Association of Neurorestoratology (IANR). He is Founder of “The Indian Journal of Stem Cell Therapy”. He has been conferred with numerous awards and honors during his career. He has extensively researched the pathophysiology of various neurodevelopmental disorders and evolved a comprehensive treatment options for the disorders like Autism, Cerebral Palsy and Intellectual disability. He has pioneered the concept of stem cell therapy for incurable neurological disorders. His other areas of special interest are Neuroendoscopy, Psychosurgery, Spinal fixations & Revascularization for cerebral ischemia.

Abstract:

Autism spectrum disorder (ASD), a group of neurodevelopmental disorders, is characterized by abnormal development of brain function and connectivity. Routine magnetic resonance imaging studies have shown some volumetric changes, but inconsistently. Functional neuroimaging modalities have suggested abnormal brain function. We studied the brain function, using [18F] 2 fluro 2 deoxy D glucose FDG Positron emission tomography – computed tomography scan,  of 45 children diagnosed with ASD on the basis of DSM IV – TR criteria. It was found that children with ASD showed hypometabolism in specific regions of brain, such as, amygdala, hippocampus, parahippocampal gyrus, caudate nucleus, cerebellum, mesial temporal lobe, thalamus, superior and middle temporal pole, and higher metabolic uptake in calcarine fissure and Heschl’s gyrus. The data obtained from them was compared to the previously published data of neurotypical children.  The findings suggested that as compared to the control data, median SUVs in children with ASD decreased linearly as the age progressed. These findings suggest that selective, progressive hypometabolism in specific brain region could be a pathophysiological mechanism in ASD.

Speaker
Biography:

Clare Melvin, MSc, DipPsych, BA (Hons), is completing her PhD at the Tizard Centre, University of Kent, exploring sexual offending behaviours in individuals with autism spectrum conditions.  Clare’s research interests focus on adults and children with IDD detained under the Mental Health Act, particularly the therapeutic treatment of offending behaviours.  Clare has clinical experience in this area and, in addition to her PhD, works at Hertfordshire Partnership NHS Foundation Trust on research involving individuals with IDD who display offending behaviours.  Clare also works as an Associate Consultant for the British Institute of Learning Disabilities and delivers teaching at the University. 

Abstract:

Aims: There is some evidence to suggest poorer treatment outcomes for offenders with autism spectrum conditions (ASC). The cognitive profile associated with ASC, including difficulties with social interaction and communication, deficits in theory of mind and empathy, inflexible thinking styles and special interests, may present barriers to treatment for sexual offending and create challenges working with offenders with ASC.  This study investigated the use of adapted sex offender treatment programmes (SOTPs) for individuals with ASC.

Method: Semi-structured interviews were conducted with group facilitators (n=12) and male services users with ASC (n=13). Interviews with the men explored their experiences of attending a group and views of sexual risk since treatment. Clinician interviews focused on engagement and response to core treatment components e.g. victim empathy, cognitive distortions, etc., and any differences to non-autistic offenders.

Results: Grounded Theory was used to conceptualise treatment outcomes and future sexual risk.  For service users, this was framed by their understanding of the group’s purpose, perceptions of their behaviour, and beliefs about change following treatment. For the clinicians, clear benefits were identified, including: presence of other group members, a forum to develop pro-social roles/relationships, and increased opportunity for monitoring. Challenges regarding empathy, specifically emotional empathy, and shifts in cognitive distortions were felt to be particularly pertinent to those with ASC, as well as questions over internalisation of therapy.

Conclusion:  Despite identification of a number of challenges, adapted SOTPs were considered beneficial by both men with ASC and clinicians, especially in light of a dearth of evidenced-based alternatives.

Speaker
Biography:

I am currently working as a Statistician in Asian Heart Institute & I have completed my M.Phil. In Bio-Statistics & Demography. Also I have four month experience in working as statistician at govt. Medical College and hospitals, Chandigarh under ICMR project.

Abstract:

Background: Autism spectrum disorder (ASD) is a neurological and developmental disability that can cause significant social, communication andbehavioral challenges. The actual number of children with autism in India is unclear,and there is no evidence of the quality of life of the parents with ASD children. This study aimed to describe the challenges, coping strategy, and quality of life of the parents having children with ASD in Mumbai, India. 

Materials and Methods: A qualitative approach using grounded theory has been adopted to explore the challenges, coping strategy, and quality of life. Ten in-depth interviews were carried out with parents of children with ASD. Qualitative content analysis has been carried out through N.ViVo software.

Results and Conclusion: Emotional distress is a major impact on parents. Parents struggle with managing various relationships with spouses, other children, and extended family members due to the increased attention required for their child. Social isolation and community intolerance are experienced by parents,and there isa problem of negotiating public encounters. Parents perceive very few doctors identify autism properly and suggest modalities to address it.

Speaker
Biography:

Joanne Cheung completed her BSc in Psychology at Bristol University UK and her MSc at King’s College London. She is a research fellow at the Institute of Psychiatry, Psychology & Neuroscience and is researching psychopathology in Tuberous Sclerosis Complex.      

Abstract:

Tuberous Sclerosis Complex (TSC) is a genetic disorder caused by mutations in the TSC1 or TSC2 genes. It is not known if the risk for ASD or ADHD is increased in both TSC1 or TSC2 mutations. This study aims to determine the prevalence of ASD and ADHD based on mutation type (TSC1 or TSC2 gene). The TS2000 study is a population based, longitudinal study of the natural history of TSC. 125 children diagnosed with TS were recruited. And followed up at several time points. ASD and ADHD were assessed using standardised and semi-standardised measures. Of the 125 participants, 19 had TSC1 mutations and 77 had TSC2 mutations. 42.9% of patients with TSC2 mutation met stringent diagnostic criteria for ASD, 24.5% met criteria for probable ASD and 12.2% for more broadly defined ASD. Amongst patients with TSC1 mutations, 25% met stringent diagnostic criteria for ASD, 37.5% probable ASD and 18.8% met criteria for more broadly defined ASD. The difference between TSC1 & TSC2 was not significant: p= 0.77. In TSC1 cases, definite ADHD was diagnosed in 27.3% and probable ADHD was present in 9.1%. Amongst TSC2 cases, 20.8%. had definite ADHD and 22.9% probable ADHD. The difference between TSC1 & TSC2 was not significant: p=0.70. Mutations in both the TSC1 and TSC2 genes are associated with an increased risk of ASD and ADHD compared to the general population, but in this small sample, the prevalence of ASD and ADHD in TSC1 and TSC2 cases was not significantly different.

Speaker
Biography:

Jenny Palmiotto, Psy. D., LMFT is the CEO and clinical director of The Family Guidance & Therapy Center which provides services in Southern California and Central Texas. She is the founder of Love & Autism; a social change movement and national conference where autistic people are positioned as leaders. As a clinician, Jenny is driven by her values of authenticity, adventure, and belonging. She wholeheartedly invites joy into each therapy session using family-focused, relational methods such as Relationship Development Intervention (RDI), Emotionally Focused Therapy (EFT), Movement Method (MM), and The Daring Way. With seventeen years of experience, she brings a depth of understanding and compassion to autistic people and their families. Its more important than ever to grow loving-kindness in our families, homes, and communities; Jenny enjoys helping people do just that.

Abstract:

This study aimed to improve understanding of interactions between parent-child with autism within two domains central to autism; intersubjectivity and social regulation. In this qualitative study, the researcher examined the Relationship Development Assessment-Adapted (RDA-RV) Coding Scales, a novel observational measure used to assess the quality of interactions between parent and child with autism, within the context of Relationship Development Intervention (RDI) treatment and pretreatment. The researcher used qualitative content analysis to describe each of the subcategories of the RDA-RV Coding Scales within the two main categories--Intersubjective Engagement States and Interactive Regulation States. Eleven parent-child dyads participated by providing short video recordings of parent-child interactions in RDI guiding engagements and a pretreatment video. With review of textual transcriptions and video, the researcher’s findings included three themes that were tracked in each of the four predetermined subcategories of the Intersubjective Engagement States. The themes found were: (a) quality of affective connection/relatedness, (b) quality of communication, and (c) quality of gaze. In addition, within the four predetermined subcategories of Interactive Regulation States, three unique themes emerged: (a) quality of monitoring and aligning (b) dynamic-ness (c) complexity of the share endeavor. The researcher deconstructed each theme into subthemes distinguishing each subcategory as a different and distinct levels of interaction that also related to the respective main category. The researcher formulated the findings into a codebook to increase clinical and research utility of the RDA-RV Coding Scales. The results may directly influence the assessment and ongoing treatment of developmental-relational approaches, namely RDI, by increasing the usability of the RDA-RV Coding Scales.

Speaker
Biography:

Alicia Trautwein is an Autism Parenting Blogger and Influencer based in St. Louis, MO USA.  She is the creator behind TheMomKind.com, an autism parenting website that was awarded one of the Top 30 Autism Parenting Blogs of 2018.  She is featured in the book, Amazing Moms of the 21st Century by Hogan Hilling and is and life long advocate for Autism Awarenss and Acceptance.

Abstract:

With rates being 1 in 59 children in the United States being diagnosed with Autism, there is a real need for positive autism parenting advice. With the common use of social media and electronics by both autistic childed and adults, as well as the parents there of, a new world of information hasd come about. Social media and blogs are becoming the go to resource for parents in all categories, especially in the autism parenting realm.

In the last the last two years, there has been a movement of autistic parents becoming social influencers.  As one of those influencers, I have been able to reach parents that would not otherwise have any support.  Many parents of autistic children through out the world do not have a support system and also lack the insurance to see therapist for even the simpliest of questions.

Parents of autistic children struggle greatly with finding similar parents to connect with.  Prior to social media, this left many parents feeling completely isolated. By embracing social media, infulencers are able to help connect with parents and to help connect communities of parents together.  Sharing day to day life, stories, and advice online helps connect these parents in ways that other wise might be impossible.

In this discusion, we will be covering the common questions parents are asking, the use of social media to support parents, autistic children, and adults, as well as the roles that social influencers are taking in the online autism parenting realm.

Speaker
Biography:

Hideki Kozima completed his Ph.D in computer science from the University of Electro Communications (Tokyo, Japan) in 1994, then he joined National Institute of Information and Communications Technology (Tokyo/Kyoto, Japan) as a researcher and senior researcher, where he developed “Keepon”, a therapeutic robot for autism.  In 2008, he joined Miyagi University (Miyagi, Japan) as a full professor at School of Project Design, and appointed as a vice president in 2013.  In 2017, he joined Tohoku University (Miyagi, Japan) as a full professor of Graduate School of Educational Informatics, and in 2018 as a full professor of Graduate School of Education.

 

Abstract:

ASD exhibits a wide spectrum of behavioral symptoms.  A number of researchers have tried to find a unified model behind the phenotypical diversity; however, any plausible model that well-explains that diversity has not yet proposed.  We here describe our on-going attempt at modeling ASD in a unified way from the viewpoint of “cognitive granularity”.

Cognitive granularity represents the size of the basic elements that are operable in one’s cognitive system.  In other words, it represents the size of semantic units (schema, basic level categories, etc.) to articulate and recognize the environment.  While it is constrained by one’s perceptual and motor resolution, cognitive granularity determines the level of abstraction at which one can efficiently predict and control the physical and social world.

From anatomical studies of ASD brains, Casanova reported that mini-columns in ASD brains have higher density than that of TD.  A mini-column is a columnar structure with approximately 100 neurons that align vertically in the cerebral cortex.  Mini-columns are considered to be the smallest functional unit of the brain.  Higher density of mini-columns in ASD suggests that an ASD brain employs a larger number of mini-columns in information processing.  It also suggests that ASD brains process information in less integrated way because the smaller mini-columns reduce long-distance connection between them.

The characteristic granularity and connectivity in ASD brains explain the information processing styles of ASD population. ASD people acquire linguistic categories with finer and specific distinction.  ASD people have difficulties in integrating information that are represented by distantly distributed mini-columns, resulting in the failure of sensory integration, motor coordination, or acquiring “central coherence”.  Finer granularity in ASD also explains their difficulties in mentalizing other’s behavior: a variation of human goal-directed actions would look like arbitrary causal sequences of micro-actions without shared invariants, namely, “intentions”.  This suggests that “theory of mind” or “mentalization” would be based on the shared “coarser” cognitive granularity, which enables TD people to see the mental gestalt in other’s physical behavior.

  • Session on: Sensory Integration in Autism | Autism Associated Syndromes | Emotion Regulation in Autism | Autism Associated Disorders
Speaker
Biography:

Dr. LaVigna received his Ph.D. from the University of Chicago and has worked in the field of Autism since 1971.  He has served on the Professional Advisory Board of the Autism Society of America since 1978.  He Co-founded the Institute for Applied Behavior Analysis (IABA) in 1981, which currently serves over 600 children, adolescents and adults.  He has published 4 books on the topic of Positive Behavior Supports and more than 40 journal articles and book chapters.  He has also served as guest editor for special editions of two respected journals.   

Abstract:

Will be updated shortlyBehaviors of concern are those that can put the person or others at risk. This can lead to restrictive practices aimed at keeping people safe, which themselves can lead to harm, scandal and a decreased quality of life. Positive Behavior Support (PBS) holds a surprising solution to this dilemma.  When a behavior of concern occurs, the immediate objective of the reactive strategy used should be behavioral "resolution", i.e., rapid, safe situational management. The quantified measure of "episodic severity" should be used to evaluate this outcome.  Rather than using a restrictive procedure, research has provided a host of evidenced based non-aversive reactive strategies (NARS) that can lead to "resolution."  These include, among others, active listening, redirection to an alternative, even preferred activity and stimulus change.  These NARS have been shown to be more effective than the restrictive procedures in reducing episodic severity and in keeping people safe.  The elephant in the room is the overwhelming but unacknowledged body of research literature that has identified a NARS that is superior to all other strategies, including both the other NARS and restrictive practices.  That is, it consistently achieves rapid, safe situational management and dramatically reduces the episodic severity of the behavior.  The elephant sitting behind the elephant in the room is the overwhelming but unacknowledged body of research literature that establishes that this remarkably effective NARS can be used without any negative side effects.   Government and agency policy should require the full use of NARS before the use of restrictive practices is allowed.

Behaviors of concern are those that can put the person or others at risk. This can lead to restrictive practices aimed at keeping people safe, which themselves can lead to harm, scandal and a decreased quality of life. Positive Behavior Support (PBS) holds a surprising solution to this dilemma.  When a behavior of concern occurs, the immediate objective of the reactive strategy used should be behavioral "resolution", i.e., rapid, safe situational management. The quantified measure of "episodic severity" should be used to evaluate this outcome.  Rather than using a restrictive procedure, research has provided a host of evidenced based non-aversive reactive strategies (NARS) that can lead to "resolution."  These include, among others, active listening, redirection to an alternative, even preferred activity and stimulus change.  These NARS have been shown to be more effective than the restrictive procedures in reducing episodic severity and in keeping people safe.  The elephant in the room is the overwhelming but unacknowledged body of research literature that has identified a NARS that is superior to all other strategies, including both the other NARS and restrictive practices.  That is, it consistently achieves rapid, safe situational management and dramatically reduces the episodic severity of the behavior.  The elephant sitting behind the elephant in the room is the overwhelming but unacknowledged body of research literature that establishes that this remarkably effective NARS can be used without any negative side effects.   Government and agency policy should require the full use of NARS before the use of restrictive practices is allowed.

Behaviors of concern are those that can put the person or others at risk. This can lead to restrictive practices aimed at keeping people safe, which themselves can lead to harm, scandal and a decreased quality of life. Positive Behavior Support (PBS) holds a surprising solution to this dilemma.  When a behavior of concern occurs, the immediate objective of the reactive strategy used should be behavioral "resolution", i.e., rapid, safe situational management. The quantified measure of "episodic severity" should be used to evaluate this outcome.  Rather than using a restrictive procedure, research has provided a host of evidenced based non-aversive reactive strategies (NARS) that can lead to "resolution."  These include, among others, active listening, redirection to an alternative, even preferred activity and stimulus change.  These NARS have been shown to be more effective than the restrictive procedures in reducing episodic severity and in keeping people safe.  The elephant in the room is the overwhelming but unacknowledged body of research literature that has identified a NARS that is superior to all other strategies, including both the other NARS and restrictive practices.  That is, it consistently achieves rapid, safe situational management and dramatically reduces the episodic severity of the behavior.  The elephant sitting behind the elephant in the room is the overwhelming but unacknowledged body of research literature that establishes that this remarkably effective NARS can be used without any negative side effects.   Government and agency policy should require the full use of NARS before the use of restrictive practices is allowed.

Speaker
Biography:

Jonathan completed his undergrad and graduate degrees at Andrews University earning a BSW and MSW focused in clinical social work. Jonathan is an experienced therapist with a demonstrated history of working in the hospital, community and health care industry. He has earned certification as a family therapist and passed the masters level licensure examination set for social workers by the Association of Social Work Boards.  Jonathan is now functioning as the Experiential Therapist on the CAS multidisciplinary team where he has been working since returning home to Bermuda in December 2015.

Abstract:

Bermuda’s Child and Adolescent Services (CAS) annually receives many requests for its therapeutic summer camp. This Intervention is predominantly reserved for young children who present with traits primarily consistent with a neurodevelopmental disorder, disruptive, impulse-control and conduct disorders that subsequently exclude them from mainstream summer camp programs offered in Bermuda.  In recent years CAS summer camp has largely been used to assist in the process of differential diagnosis using a multidisciplinary team approach to rule out ADHD and ASD. To maximize the benefits of participation in such a service, individual referrals are short listed based on criteria set by the clinical team.  Age, presenting traits, gender, working diagnosis and overall group size are all considered ensuring there is an appropriate peer group for the summer experience, consequently maximizing benefits and minimizing risk to participants.   Daily observations by clinical staff, individual assessments, individual interactions, daily parent feedback, treatment plan guided interventions and daily review of each participant provides a comprehensive approach toward each service user. Over the years there have been high rates of service users diagnosed with ADHD and ASD. Camp referrals although similar in nature often involve varied symptom presentations making ruling out disorders a multifaceted process. Traditionally diagnosis of ADHD and ASD are made through questionnaire and snap shot interactions with trained clinicians. Utilization of the CAS therapeutic summer camp gives clinicians the opportunity to observe, interact and manage service users over a period of time providing more information and minimizing the likely hood of misdiagnosing.     

Evangelos Kavakis

Aristotle University of Thessaloniki, Greece

Title: Parental interpretations of autism: A Greek Perspective
Speaker
Biography:

Evangelos Kavakis has completed his Master’s Degree in Special Educational Needs at USW Newport City Campus with a keen interest in the field of Autism Spectrum. He has a Bachelor’s Degree in Philosophy and Education (Honors) from Aristotle University of Thessaloniki. He is currently working as a Teaching Assistant in a primary school for children aged 3-11 years old, who are on the spectrum of autism, in Cardiff.

Abstract:

Parental Interpretations of Autism: A Greek Perspective: The aim of this research project was to have a better understanding of the perception and life experiences of rural Greek parents raising children on the spectrum of autism. For this reason, a qualitative research has been adopted through qualitative semi-structured individual interviews. Parents from 7 families of children with autism, aged between ten and fifteen years old residing in a northern Greek province shared their personal story. The data were analyzed using qualitative software (NVivo) and themes began to emerge. Four themes representing the essential challenging elements of the parents' experiences included: Parents’ understanding, impact of autism, sources of information and the support and its role in the life of parents. This qualitative exploration of parental experiences has yielded several key findings. Knowledge was added to the current literature on autism in specific areas through first-hand accounts as data and can be used in the future in a plethora of educational and not only ways. 

Speaker
Biography:

I am currently working as a Statistician in Asian Heart Institute & I have completed my M.Phil. In Bio-Statistics & Demography. Also I have four month experience in working as statistician at govt. Medical College and hospitals, Chandigarh under ICMR project.

Abstract:

Background: Autism Spectrum disorder (ASD) is a complex developmental disability which is fast growing in nature across the globe. There is limited empirical evidence on autism in India. The actual number of children with autism is unclear as many of the characteristics are similar to other neurological and mental disorder and not counted as ASD in India. This study aimed to describe the erceivedharacteristics of children with ASD and its risk factors in Mumbai, India.

Materials and Methods: A qualitative approach using grounded theory has been adopted to explore the perceived characteristics and risk factors associated with ASD. Twenty in-depth interviews were carried out with parents and teachers of children with ASD. Qualitative content analysis has been carried out through N.ViVo software.

Results and Conclusion: We found the major features which have been observing in kids with ASD are of social interaction and speech problem, i.e., they lack in social interaction such as eye contact, late response, and repeating words. Both teachers and parents have observed these characteristics. Anxiety and phobia are two characteristics which have been found in our study. The perceived risk factors associated with ASD are mainly genetic, and stress during pregnancy.

Speaker
Biography:

Lorry Chen has completed her dietetic education from Western University and has been in clinical practice for more than 25 years in a pediatric rehabilitation hospital serving children with disabilities.  Addition to her clinical practice, her research interest includes exploring energy requirements, obesity and the evaluation of anthropometric parameters in children with disabilities.  She has been a collaborator in several published research articles in peer review journals about obesity in children with disabilities.

Abstract:

Weight gain, which is one of the harmful effects of psychotropic medication, is likely the best understood risk factor for obesity in both children and adults with autism spectrum disorder (ASD). Data obtained from clinical and nationally representative populations of children demonstrate that approximately 30% - 60% of children with ASD are prescribed at least one psychotropic medication, and 10% are prescribed more than three medications at the same time. To date, no established treatments or preventative measures have been developed to combat psychotropic-induced weight gain (PIWG) (1). Controlled energy intake combined with elevated protein intake (CEEP), may represent an effective and practical strategy for limiting weight gain. Potential beneficial outcomes associated with protein ingestion include: a) increased satiety—protein generally increases satiety to a greater extent than carbohydrate or fat and may facilitate a reduction in energy consumption; b) increased thermogenesis—higher-protein diets are associated with an increase in thermogenesis, which also influences satiety and increase energy expenditure; and c) maintenance or growth of fat-free mass (muscle) — in some individuals, a moderately higher protein diet may provide an increase effect on muscle protein synthesis, favoring the retention of lean muscle mass while improving metabolic profile  (2). 

This proposed study’s primary objective is to evaluate the feasibility (study designs, methods, processes) and acceptability (client/family satisfaction, perceived effectiveness) of a controlled energy diet with elevated protein intake to combat PIWG in children with ASD who are currently taking prescribed psychotropic medication.

Speaker
Biography:

Brian McCann is a doctoral candidate at the University of Dundee. He has been teaching English language and literature for over 25 years and has taught at Dublin City University, Dublin Business School, King Fahd University, Saudi Arabia, Aoyama Business School, Tokyo and is now a Special Education teacher at the Newpark Autism Centre, Dublin. He has an M.Phil. in Applied Linguistics from Trinity College, Dublin, an MBA in Educational Management from the University of Leicester and  4th Degree Black Belt in Aikido from World Headquarters, Tokyo. He regularly teaches Samurai weaponry to autistic students.

Abstract:

This study questions what it is to be an autistic adult as a novice martial artist in the practice of Aikido. It responds to a gap in the literature on martial arts as an intervention in autism and investigates the impact of martial practice on the affective domain. Four participants met with two inclusion criteria: firstly, to be between eighteen and sixty-five and secondly, to   hold a clinical diagnosis of Autistic Spectrum Disorder  (ASD) (DSM-5). The research was conducted using Interpretative Phenomenological Analysis (IPA). The sample engaged in an adapted Aikido course taught by officially registered black belt instructors within a formal dojo setting. Video and photo elicitation were used in the semi-structured interviews and the participants logged their experiences. Two phases of interviews followed the 12-class course.  Phase Two followed between four and six months after Phase One to register any longitudinal changes.  The researcher personally transcribed all interviews. IPA was selected because it combined the rigour of hermeneutics, idiography and phenomenology. Phase One revealed superordinate themes across the four transcripts revealing issues of fear, bullying, threat, protection, anxiety and safety.  Phase Two revealed a significant longitudinal impact on the daily lives of the participants, ranging from a newly acquired life-world structure to an increase in peace of mind. The study contributes to the current wave of advocacy for the autistic nation and should encourage and support further research. On a pragmatic level, it may offer inspiration to martial art instructors teaching autistic adults in their classes.

Speaker
Biography:

Professor Damian Riviez, Ph.D., is the Dean of the Abu Dhabi School of Management in the UAE. His research interests include innovative platforms of human learning and development in business, communities and education. Damian has a passion for studying new applications for learning to address diversified learning challenges in human development. Professor Riviez holds a Doctorate in Educational Administration and Leadership, a Master’s of Science in Special Education, and a Graduate Certificate in Autistic Spectrum Disorder. Dr. Riviez has a child with additional learning needs.

Abstract:

The development of language, communication and literacy is at the heart of human development. The acquisition of language skills in early childhood development and the growth and retention of those skills over a lifetime, serve as the barometer for diagnosis in addressing variances of ability and use. Moreover, these skills serve as a critical value in providing tangible proof of perceptual cognitive performance, action and behavior. The purpose of this project is to investigate the use of Audio Psycho Phonology (APP) as a foundational tool for individuals with learning challenges. A literature review was conducted in determining the viability of APP as an effective intervention for those with learning difficulties. Results indicate moderate success, albeit, variable in diverse cases. Further, a discussion on a relevant case study will be presented.