Day 2 :
Keynote Forum
Nagwa Abdel Meguid
National Research Center, Egypt
Keynote: Severity-tracking biomarkers for ASD
Time : 10:00-10:30
Biography:
Dr Meguid is a professor of human genetics and Former Head of Human Genetics Unit, National Research Center (NRC) in Egypt. She holds a Ph.D. in Human Genetics, and she is a Senior Geneticist at the Genetics Institute, Pasadena, California; a fellow of Uppsala University, Sweden and Yale Universities. She was one of five selected scientists to win the outstanding L’Oreal UNESCO Award for women in Science for Africa & Middle East (2002). Awarded with the National State Award of Excellence in Advanced Medical science Technology, 2016. She is the head of the laboratory of research in DNA in genetic behavioral disorders and Founder of autism research study. Jury president L’OREAL-UNESCO Awards. Supervised 50 theses. Has 70 International publications.
Abstract:
ASD develops through a complex set of etiologies that involve environmental, genetic, and immunological factors. The subjectivity of behavioral diagnosis urges the need for biomarker clinical tests to improve and complement ASD diagnosis. A wide range of biomarkers to diagnose and indicate the severity of ASD include metabolic and genetic biomarkers. The role of oxidative stress in the etiology of an ASD diagnosis, including increased lipid peroxidation, altered antioxidant enzymes in plasma, mitochondrial dysfunction, and the genetic factors; recently reported,as tracking biomarkers will be discussed. However, it is still premature to consider these genetic variants as true biomarkers for ASD, due to their regional-specific nature. The panel addresses two principle categories; molecular with recent gene discoveries and analyze the transcriptional profile of genes involved in the oxidative stress pathway in autism, in addition to relationship between oxidative stress related blood, urine and nutritional biomarkers. Herein, we will comprehensively review the biomarkers reported in ASD in addition to our own experience. It is important to establish those biomarkers resulting able to help diagnosis and optimize the treatment of ASD.
Keynote Forum
Patrick Bolton
King’s College London, UK
Keynote: Distinct risk pathways to autism spectrum disorder and attention deficit hyperactivity disorder in tuberous sclerosis complex
Time : 10:30-11:00
Biography:
Patrick Bolton is Professor of Child & Adolescent Neuropsychiatry at King’s College London, UK. He has published more than 300 peer reviewed scientific papers and serves as an editorial board member on several autism related journals
Abstract:
Tuberous Sclerosis Complex (TSC) is associated with high rates of autism spectrum disorder (ASD) and attention deficit hyperactivity disorder (ADHD).
The aim of this study was to characterise the interaction between risk pathways leading to ASD and ADHD in TSC.
Participants were recruited from the UK TS 2000 Study Cohort, a nationally ascertained longitudinal study of TSC. In Phase 1 of the study (n=125, median age=66 months), data on epilepsy and cortical tuber count were gathered. In Phase 2 of the study (n=88, median age=148 months), information on developmental outcome, including ASD and ADHD, was obtained and an extensive cognitive battery was administered.
Structural equation modeling indicated distinct risk pathways linking the type of mutation (TSC1/TSC2) to ASD and ADHD symptoms. Indirect pathways to ASD operated through (1) increased cortical tuber load, to increased severity of seizures in the first two years of life, to deficits in social cognition, to ASD. In contrast, indirect pathways to ADHD operated through (1) increased tuber load, to increased severity of seizures in the first two years of life, to impaired EF, to ADHD.
The findings suggest that cognitive deficits may mediate the relationship between seizures early in life and later behavioural symptoms. Importantly, the findings suggest that there are disorder-specific cascading risk pathways to the complex behavioural manifestations of TSC. Identification of distinct clinical and cognitive markers that are associated with ASD and ADHD in TSC will aid in targeting more specific treatment and intervention strategies to improve later behavioural outcomes.
Keynote Forum
Gocha Shatirishvili
Cord Blood Bank Geocord, Georgia
Keynote: Safety and Efficacy of Autologous Cord Blood Intrathecal Transplantation for Children with Autism Spectrum Disorder (Preliminary Results)
Time : 11:20-11:50
Biography:
Dr. Gocha Shatirishvili is Medical Director of Cord Blood Bank Geocord, and Chief Scientist at at Cancer Research Center, Tbilisi. Dr. Shatirishvili has earned his doctoral degree at Medical University Lubeck. Since 2000 his research interests focued on stem cell therapy: cell banking, cell therapy with bone marrow (spinal cord injury, liver cirrhosis, heart failure, autism, menthal disability) and cord blood (ongoing study on autism), immunotherapy with NK cells and DC vaccine. He is a member of Cord Blood Association, Perinatal Stem Cell Society and AABB.
Abstract:
Autism Spectrum Disorder (ASD) is a neurodevelopmental condition with onset early in life. The stereotypical behavior, impairment of social communication and restricted activities are charachteristics. Immunodysregulation, hypoperfusion of brain and neuroinflamation play role in pathogenesis. There is no cure, ABA therapy is not enough efficient and new therapies are needed. Several trials demonstrated that CB transplantation for autism is safe and effective. Cord blood stem cells have positive paracrine effect on affected brain. But not all cord blood units contain recommended cell doses for intravenous treatment. Intrathecal injection could solve this problem. This is safe route, no neural tissue damage occurs, the circumvention of the blood-brain-barrier finds place. All Injected cells are transported by CSF to the affected parts of brain, while most of intravenously transplanted cells are caught in lungs, spleen and liver, only tiny number of cells migrate through blood-brain barrier.
Mardaleishvili Medical Center, Tbilisi startet I phase study. Children at age of 4-12 years are injected intrathecally with autologous cord blood three times with 6 months intervals. No minimal cell dose was established. 3 patients were treated yet. No significant side effects were observed. Efficacy was confirmed by VABS-II and ADOS-2.
After two transplantations children’s conditions were improved steadily and significantly. Behavioral improvement, less aggressiveness, no emotional outbursts and impressive improvement of untelectual capacities as well as vocabulary were reported.
- Session on: Autistic Challenges in Everyday Life | Autism: Transitioning to Adulthood | Autism and Crime | Autism Awareness
Session Introduction
Meis Adwan
King’s College London, UK
Title: Investigating motor control difficulties in autism spectrum disorders
Biography:
Meis Adwan, a multilingual ambitious individual, first moved to the UK in 2004, at the age of 10. Growing up, she was always passionate by science and linguistics. This passion led to her completing her BSc in Human Biology, Spanish and English Language and Communication at the University of Hertfordshire, obtaining a 2:1 honours degree. Following her Bachelor studies, Meis decided to unravel humanity's greatest mystery, the brain. She completed her MSc in Neuroscience at King's College London; her research project, which investigated motor control difficulties in Autism Spectrum Disorders, was awarded a distinction with an outstanding mark of 81% in her thesis. She is currently looking for opportunities to further her passion for this field of neuroscience and experimental psychology by potentially completing a PhD in the upcoming years.
Abstract:
Although motor control deficits are not a core characteristic of Autism Spectrum Disorder (ASD), previous literature has suggested an impairment in the motor skills of autistic subjects. However, due to the heterogeneity of the disorder and thus the different severity of symptoms present in each individual, the results remain controversial. In addition, previous studies have used small sample sizes while examining one aspect of motor control at a time.
Therefore, the aim of this study is to examine autistic traits in neurotypicals and determine whether they are associated with poor motor control. Six motor control aspects were measured, including: end-state comfort, motor planning, muscle tone, kinematics, speeded movement and visually-guided movement. This was done using a battery of tasks including questionnaires such as the Autism Quotient (AQ), Adult Dyspraxia Checklist (ADC) and the Toronto Alexithymia Scale-20 (TAS-20), motion tracking, obstacle avoidance and computerised tasks. A total of thirty-three (n=33) control subjects took part in the study, all of which reported no motor control disorders.
The results showed no significant correlation between the participants’ questionnaire scores and the six motor skills (p>0.05). This therefore suggests that higher autistic traits are not associated with a poorer motor performance in neurotypicals. These findings could be used as an initial step to a larger study involving neurotypicals and individuals with ASD, thus providing a deeper insight into the motor control deficits in ASD.
Nisha Laila
All India Institute of Medical Sciences, India
Title: Experiences of mothers parenting children with Autism Spectrum Disorder -A Qualitative Grounded theory Approach
Biography:
Ms. Nisha Laila has completed her BSN and MSN in pediatric Nursing. She had completed her M.Phil from Manipal University, India in the year 2018 .She had 10 years of experience in teaching and clinical areas especially in the field of Pediatric cardiology and cardiac surgery. Ms. Nisha is Currently working as Nursing Officer, Heart Failure &Heart Transplant unit, Department of cardiology at All India Institute of Medical Sciences, New Delhi, India. Published research papers as part of student projects.
Abstract:
Autism is one of the complex neuro developmental disability that commonly manifest symptoms during early child hood years of life and affects various aspects of development in child such as social, communication and behaviour. Numerous studies reported that the prevalence of diagnosed Autism Spectrum Disorder is drastically increasing over these decades. This qualitative study provides evidence for Indian mother’s parenting experiences of children with ASD and findings would provide identification of problems, need based care and guidance for professionals. The main objective of this study was to explore the experiences of mothers parenting children with Autism Spectrum Disorder with a view formulate a conceptual model based on the constructs identified. The participants were mothers between the age group of 24-50 years undergoing parent child training from New Delhi, India. The study used qualitative grounded theory methodology in order to derive a conceptual model for ‘parenting a child with ASD’. The study is based on in depth interviews with seven mothers who were meeting the eligibility criteria. The interviews were digitally recorded and anonymity and confidentiality of the participants were assured. The translated data were coded and categorised using open code software. The qualitative data analysis revealed thirteen major categories and forty six sub categories and a core category was derived out of the
concepts and formulated a conceptual model of “coping with autism, Unique and differential parenting; Mothers Journey towards adaptation”. This model could be used as a basis to test the hypothesis in various aspects of the concepts discussed in relation to mother’s experiences of a child with ASD and thus a substantive theory of parenting a child with ASD can be developed.
Patrick Bolton
King’s College London , UK
Title: Distinct risk pathways to autism spectrum disorder and attention deficit hyperactivity disorder in tuberous sclerosis complex
Biography:
Patrick Bolton is Professor of Child & Adolescent Neuropsychiatry at King’s College London, UK. He has published more than 300 peer reviewed scientific papers and serves as an editorial board member on several autism related journals
Abstract:
Tuberous Sclerosis Complex (TSC) is associated with high rates of autism spectrum disorder (ASD) and attention deficit hyperactivity disorder (ADHD).
The aim of this study was to characterise the interaction between risk pathways leading to ASD and ADHD in TSC.
Participants were recruited from the UK TS 2000 Study Cohort, a nationally ascertained longitudinal study of TSC. In Phase 1 of the study (n=125, median age=66 months), data on epilepsy and cortical tuber count were gathered. In Phase 2 of the study (n=88, median age=148 months), information on developmental outcome, including ASD and ADHD, was obtained and an extensive cognitive battery was administered.
Structural equation modeling indicated distinct risk pathways linking the type of mutation (TSC1/TSC2) to ASD and ADHD symptoms. Indirect pathways to ASD operated through (1) increased cortical tuber load, to increased severity of seizures in the first two years of life, to deficits in social cognition, to ASD. In contrast, indirect pathways to ADHD operated through (1) increased tuber load, to increased severity of seizures in the first two years of life, to impaired EF, to ADHD.
The findings suggest that cognitive deficits may mediate the relationship between seizures early in life and later behavioural symptoms. Importantly, the findings suggest that there are disorder-specific cascading risk pathways to the complex behavioural manifestations of TSC. Identification of distinct clinical and cognitive markers that are associated with ASD and ADHD in TSC will aid in targeting more specific treatment and intervention strategies to improve later behavioural outcomes.
Gocha Shatirishvili
Cord Blood Bank Geocord, Georgia
Title: Safety and Efficacy of Autologous Cord Blood Intrathecal Transplantation for Children with Autism Spectrum Disorder (Preliminary Results)
Biography:
Dr. Gocha Shatirishvili is Medical Director of Cord Blood Bank Geocord, and Chief Scientist at at Cancer Research Center, Tbilisi. Dr. Shatirishvili has earned his doctoral degree at Medical University Lubeck. Since 2000 his research interests focued on stem cell therapy: cell banking, cell therapy with bone marrow (spinal cord injury, liver cirrhosis, heart failure, autism, menthal disability) and cord blood (ongoing study on autism), immunotherapy with NK cells and DC vaccine.
He is a member of Cord Blood Association, Perinatal Stem Cell Society and AABB. He regularly is speaker in stem cell congresses worldwide, published 10 papers.
Abstract:
Autism Spectrum Disorder (ASD) is a neurodevelopmental condition with onset early in life. The stereotypical behavior, impairment of social communication and restricted activities are charachteristics. Immunodysregulation, hypoperfusion of brain and neuroinflamation play role in pathogenesis. There is no cure, ABA therapy is not enough efficient and new therapies are needed. Several trials demonstrated that CB transplantation for autism is safe and effective. Cord blood stem cells have positive paracrine effect on affected brain. But not all cord blood units contain recommended cell doses for intravenous treatment. Intrathecal injection could solve this problem. This is safe route, no neural tissue damage occurs, the circumvention of the blood-brain-barrier finds place. All Injected cells are transported by CSF to the affected parts of brain, while most of intravenously transplanted cells are caught in lungs, spleen and liver, only tiny number of cells migrate through blood-brain barrier.
Mardaleishvili Medical Center, Tbilisi startet I phase study. Children at age of 4-12 years are injected intrathecally with autologous cord blood three times with 6 months intervals. No minimal cell dose was established. 3 patients were treated yet. No significant side effects were observed. Efficacy was confirmed by VABS-II and ADOS-2.
After two transplantations children’s conditions were improved steadily and significantly. Behavioral improvement, less aggressiveness, no emotional outbursts and impressive improvement of untelectual capacities as well as vocabulary were reported.
Lyliana Rivera Tirado
Lean Education Corp. Vega Baja, Puerto Rico
Title: The educational game used as a treatment to work the emotions of the child with autism
Biography:
Lyliana Rivera Tirado has completed her doctorate in Special Education at the age of 32 years of NOVA Southeastern University in Puerto Rico Campus. He has certifications in neuroeducation, cognitive behavioral therapist, autism, educational technology, neurolinguistics, rational emotive behavioral therapis among others. He is the director of LEAN Education corp, a Puerto Rican corporation dedicated to finding tools and effective techniques for the intervention of children with autism and other developmental disordes.
Abstract:
The concern about how to help children with autism control their emotions, led us to investigate the use of the game as an effective treatment. The game is the activity that children enjoy most during their first years of life and to which they spend more time. It is estimated that 60% of the time they spend awake are engaged in playing. The game is the first activity in which children participate and through which they begin to interact with everything that surrounds them. In fact, it is the first socialization agent that allows children to interact with others and develop their communication skills. While children play also stimulates the segregation of acetylcholine, a neurotransmitter involved in the functioning of motor, neuroendocrine and sensory functions, which also regulates the ability to concentrate, the formation of memories and the development of attention and logical thinking. The game strengthens neuronal connections, stimulates the development of the prefrontal cortex, contributes to the formation of the social brain. Having an active functioning of the child's brain is a predominant factor so that the child with autism can express their emotions. The emotions manifested during the game can help these are known and identified to guide the child towards the management and knowledge of their emotions. The emotions of children with autism is one of the concerns of caregivers and teachers. This is why the use of an effective tool like the game is of great help to all the people close to the child
Clare Melvin
University of Kent, UK
Title: Treatment effectiveness for offenders with autism spectrum conditions: a systematic review
Biography:
Clare Melvin, MSc, DipPsych, BA (Hons), is completing her PhD at the Tizard Centre, University of Kent, exploring sexual offending behaviours in individuals with autism spectrum conditions. Clare’s research interests focus on adults and children with IDD detained under the Mental Health Act, particularly the therapeutic treatment of offending behaviours. Clare has clinical experience in this area and, in addition to her PhD, works at Hertfordshire Partnership NHS Foundation Trust on research involving individuals with IDD who display offending behaviours. Clare also works as an Associate Consultant for the British Institute of Learning Disabilities and delivers teaching at the University.
Abstract:
Theoretical suppositions suggest a potential vulnerability in some individuals with autism spectrum conditions (ASCs) to displaying offending behaviours. Additionally, it is recognised that the features of ASCs may result in possible barriers to treatment. A systematic review was undertaken to identify empirical evidence examining the effectiveness of treatment programmes for offenders with ASCs and to explore the potential impact of ASC symptoms on treatment outcomes. The studies identified consisted of a small number of case series and a collection of case reports with little or no direct comparisons to offenders without ASCs. A synthesis of the findings highlighted variability in treatment approach and impact. Effectiveness was primarily defined by reduction in further offending behaviours and was found to be variable across the data. The potential relationship between the symptoms of ASCs and treatment outcome was explored with all case reports identifying the need for adaptations to treatment programmes, necessitated by the symptoms of ASCs. This systematic review joins an existing body of literature emphasising need for more controlled research into the effectiveness of offending behaviour treatment programmes for individuals with ASCs, and for further investigation into the impact of the clinical features of ASCs on treatment outcomes.
Moffat Makomo
Occupational Therapist-Bermuda Hospitals Board, Bermuda
Title: Community based Teen life skills program: The Bermuda experience
Biography:
Moffat Makomo has been an Occupational Therapist for the past 14 years working with both adults and children with Learning disabilities and Autism Spectrum disorders. He is part of the Child and Adolescent multidisciplinary team which also has the first Bermuda Autism Diagnostic clinic. Mr. Makomo is also part of the Bermuda Autism taskforce
Abstract:
Introduction/rationale: Community based programs for teenagers have been previously linked with effective acquisition of knowledge, change in perceptions, & attitudes as well as change in behaviors. This presentation will detail how new teen life skills program was able to address some of the barriers and equipped the participants with skills they needed. This program had teenagers with ASD and depression and anxiety who were involved in a two part program of workshops and job placement, for them to be able to put theory into practice.
Objectives: To outline the process of the teen life skills program from conception to implementation and through evaluation in hopes that the outline can be used to initiate similar programs worldwide.
Approach: The process, objectives, benefits and opportunities in coming up with the program will be presented in the presentation.
Practice Implications: Creativity and adaptability in the practicing community will pave way for innovations and out of the box programs for teenager in our profession as Occupational Therapists. We are in an ever-changing world therefore addressing the needs of our community by developing services increases awareness of the benefit of life skills training for the teenage population in mental Health
Conclusions: Teen life programs are a great opportunity for teenagers to put theory into practice and develop the skills needed to attain and sustain employment opportunities.
Isabel Bullon
Salamanca University School of Education and Psychology, Spain
Title: Sex was rude, now it's real
Biography:
Isabel Bullon is a Social Worker and an Educational Psychologist who has completed a master in new creative ways of teaching people depending on their specific needs. She is also training herself as an Art Therapist as a way to deal with many mental health issues through art and creativity. She works at The Autism Hub part of United Response, where she is putting in practice a Sexuality Workshop with autistic people by using the book she is the author of, which is called: “Sex was rude, now is real” and specifically created to help people with special needs to understand sexuality and relationships.
Abstract:
Sex was rude, now it's real: It's a book still in development of which it’s main objective is to help people with special needs to understand sexuality and relationships. The last research found from 2005 tells us that just 3% of people with special needs lived as part of a couple (Emerson 2005). The myth and common idea is that Autistic people are sexless, they don't want contact with others and they don't feel sexual attraction. However, in my professional experience, I’ve seen autistic people feeling sexual desire and emotions that they struggle to understand, which makes them avoid the subject and therefore reduces the possibility of love. This observed need of understanding was the trigger of the creation of this book which is used in a 1:1 session working with the person around four main topics: Personal Space; Anatomy; Sexual Attraction and Relationships and Emotions. The book creates a guideline in how to explain step by step how love and sex happen, whilst giving the facilitator the opportunity to adjust each activity, social story or comic to the person's needs. After three months of practicing, recording and reviewing the activity with an autistic person I have already observed positive changes in behaviors, understanding and anxiety levels related to sexuality. I hypothesize that by the end of the activity not only would his knowledge be increased but his confidence with his own body and emotions would positively change the quality of his life and soon, other autistic people's lives too.
Ed. S. Anja Jelaska
Center for Autism Split, Croatia
Title: Preference for a reflexive conditioned motivating operation predicting removal of a positive reinforcer
Biography:
Mrs Anja Jelaska hold positions as Director in Center for Autism Split, Croatia and General Manager in the first clinic specialized for children and youth with ASD in Croatia “Blue Light”. She developed clinical programs for children with autism and other developmental disabilities that served as nationally recognized for research and post-graduate training under the supervision of one of the most citied expert in the field of ABA prof. Charles F. Mace. She was Program director in one of the biggest schools for children with ASD in Saudi Arabia, Shamah Autism Center and Case Manager in Stepping Stones UAE. Her research is concentrated on the functional analysis of severe behavior disorders.
Abstract:
Countdown timers have been used in several studies to enhance the effectiveness of treatments for problem behavior maintained by socially mediated reinforcers. Countdown timers that predict reinforcer removal or unavailability, or pending task onset can be viewed as conditioned reflexive motivating operations (CMO-R) that signal a worsening situation. However, it is unclear why they would enhance treatment effectiveness. This study replicated a study by Mace, Shapiro and Mace (1998) that used a countdown timer to signal reinforcer removal and task onset. In the present study, a functional analysis conducted with a 5-year-old boy with autism spectrum disorder (ASD) found that his problem behavior was maintained by unsignaled removal of an iPad followed by introduction of a task. A 2-min countdown timer set prior to iPad removal and task onset reduced problem behavior compared to these unsignaled events. A post-treatment preference assessment found that the boy preferred signaled iPad removal and over unsignaled iPad removal.
Keywords: Reflexive conditioned motivating operation, CMO-R, signaled removal of a positive reinforcer, preference for signaled removal of a positive reinforcer, conditioned reinforcement
- Session on: Autism: Pharmaceutical Trials and Advancements | Autism Research: New insights | Case Reports
Session Introduction
Elad Vashdi
Yaelcenter Institute, Israel
Title: The MDT method - A new integrative frame work for multi-disciplinary collaboration in treatment of children with ASD
Biography:
Dr Elad Vashdi founded the Yael Center in 2005 and has treated over 1000 children with disabilities since 1996. He has a doctorate in physiotherapy and published multiple articles in relation to childhood apraxia of speech (CAS), developmental disorders, child development and intellectual disability.
After working extensively with children with autism spectrum disorder, intellectual disability and CAS, he applied his expert knowledge of motor learning and child development to create a unique program for treating children with CAS called VML (Verbal Motor Learning). Following this he built a team of therapists (speech pathologists, psychologists, occupational therapists and educators) to develop a scientifically based complete developmental approach for treating children with special needs called MDT (Multi-dimensional therapy).
Abstract:
The MDT (Multi-dimensional method) is a system that enables implementing the idea of multi-dimensional therapy, a therapy process that integrates multi-dimensions in different levels. The traditional academic therapy system defines disciplines such as PT, OT or SLP which sometimes overlap in arbitrary areas of responsibility. This overlapping might create sometimes untreated gaps in different areas. Another problem with the disciplinary approach in treatment of complex cases is the need for whole developmental picture understanding and full collaboration.
Few integrative methods rose over the last 20 years in order to answer these problems (ABA, DIR, RDI, Son rise, Miller method etc.). The MDT is new system that targeted the integrative aspect in treatment but strive for optimal integration of all aspects – developmental areas, disciplines, methods, goals, learning frames and, activities.
The MDT is a perception of integration in different levels but also a tool for implementing that idea. It includes developmental evaluations, a very complex analysis tool, hundreds of master treatment programs, treatment principles and a structured procedure for treatment at all levels.
The MDT is now practiced in Israel in two day care facilities under Yael Center treating 50 children on a regular basis. In addition it is practiced in other places around the world. The MDT is the basis of the VML method.
Smita Awasthi
Clinical Director of Behavior Momentum India, India
Title: The Role of Stimulus-Stimulus-Pairing On The Emergence of Speech in 58 Non-Vocal Children with Autism
Biography:
Dr. Smita Awasthi is the first Indian USA Board Certified Behavior Analyst with a doctorate in Applied Behavior Analysis. She has 35 years of experience in the field of special needs children. She started her career at the age of 23 in a UNICEF project, where she organized rehabilitation camps for people with disabilities in villages around Delhi.
Abstract:
Children with autism exhibit significant delays in speech production and most require highly specialized training (Harlaar et al., 2008; Rutter 1985). A variety of technologies such as echoic training (Koegel et al, 1998), antecedent rapid motor imitation (Ross & Greer 2003), stimulus-stimulus pairing (Sundberg, et al.1996) have been used for inducing vocalizations in children with autism with some success. The current Experiment was conducted with n=58 non-vocal mute participants with autism between ages 1.5 and 13.5 years and examined the effectiveness of sign-mand training with paired vocal stimuli in inducing vocalization with permanent effects. Replications were conducted across 13 non-concurrent multiple baseline designs across participants. Mean IOA was 89% (54%-100%) and treatment integrity was 89% (73%-100%) . Results demonstrated under conditions of motivating operations stimulus-stimulus pairing evoked first instances of speech in 83% participants on a mastery criteria of n=7 vocalizations.
Derek Volk
Author of Chasing the Rabbit: A Dad’s Life Raising a Son on the Spectrum, USA
Title: Life as a father raising a son with autism from teh author of Amazon best seller, CHASING THE RABBIT: A DAD’S LIFE RAISING A SON ON THE SPECTRUM
Biography:
Derek is the author of the internationally acclaimed Amazon best seller, Chasing the Rabbit: A Dad’s Life Raising a Son on the Spectrum. Derek is a Maine businessman, supporter of Autism awareness, volunteer and philanthropist who, along with his family, was recently named the 2015 Spurwink “Humanitarian of the Year.” He is currently the president and co-owner of Volk Packaging Corporation, a third generation, family owned, corrugated box manufacturer in Biddeford, Maine. Derek actively participates on the Maine Business Leadership Network (BLN), a national organization that focuses on connecting employers with potential employees who have disabilities. His own company currently employs those who are deaf, blind and on the autism spectrum.
Abstract:
BIDDEFORD, Maine - In Chasing the Rabbit: A Dad’s Life Raising a Son on the Spectrum, Derek Volk shares the challenges, triumphs and coping strategies that his family encountered as they raised Dylan, a 23-year-old who was diagnosed with Asperger’s Syndrome (now known as High Functioning Autism) at the age of eight. The book also includes Dylan’s perspective from the early days to the adolescent years to his current life in the real world as a young adult.
From the time Dylan Volk was two-years-old, his parents, Derek and Amy Volk, struggled to make sense of his challenging behaviors and unique interests as they were bounced from one expert to another. Finally, at eight-years-old, Dylan was diagnosed with Asperger’s Syndrome and the family was able to start making sense of his differences. Derek has watched his son grow into a young man who has always tried to live a normal life, but struggles to make that happen. In Chasing the Rabbit, readers will follow Dylan’s journey, which showcases the unique relationship between a father and his son with Autism.
“Chasing the Rabbit is so honest and transparent that as you read, it feels you are walking on sacred ground, a quiet participant in the Volk’s intimate family moments. Derek and Dylan’s journey is an inspiration to any family that has struggled with their own uncertainties in how to manage chaotic and unpredictable situations,” said Norman E. Thibault, Ph.D., LMFT of Lifespan Integration.
Derek Volk has now shared his story to tens of thousands of audiences at over 100 locations across the United States. His presentation is always received with tremendous appreciation for his honesty and frankness.
Biography:
Nichole is a circus performer and support person with a poignant personal memoir intertwined with comical reflection and scholarly findings. After being diagnosed at the age of 19, Nichole took on the mission of raising awareness and challenging stereotypes through her writing and performing. She has since spoken at several Australian National Conferences and holds a Graduate Certificate in Autism Studies from the University of Wollongong. She is currently studying her Certificate IV in Education Support and wishes to work with children and adults living with Autism.
Abstract:
Life is Not Always A Cruise is a poignant personal memoir intertwined with comical reflection and scholarly findings. The topic reflects on why many girls and women on the Autism Spectrum are either misdiagnosed or missed completely. I believe it is important to my audience, both of academic professionals and family and individuals because the presentation tells a story from the perspective of someone living with autism. In 2014, 9 years after being diagnosed with Aspergers/ Anxiety and Depression, Nichole realised she had the opportunity to combine her love of writing and story telling with educating others regarding celebrating the differences of ASD whilst not forgetting the challenges. My presentation is underpinned by the scholarly studies throughout history and highlights the beliefs of the time as a background to the challenges I faced when being diagnosed. I hope that my story will plant seeds of understanding and a desire to change the future for the better into the minds of attendees. Autistic people deserve to tell their stories and be more involved in unravelling the why and how.
Olumuyiwa Adekunle Kehinde
University of Zululand, South Africa
Title: Debunking the Myths: The Neuroncognitive and Psycholinguistic Bases of Bi/ Multilingual Autistic Children in Africa
Biography:
Olumuyiwa Adekunle Kehinde is a Doctoral Student at the Department of English, University of Zululand, South Africa. He earned his Master Degree from University of Ibadan, Nigeria where he began investigations on various linguistic and communicative disorders in children and adults. He is a freelance writer, editor, and English tutor (online and offline) with track records in all levels of education. He has written some articles covering diverse topics on education and language related phenomena. His areas of specialization include: Neurolinguistics, Psycholinguistics, Sociolinguistics, Cognitive Linguistics, Phonetics and Phonology, Natural Language Processing and Critical Discourse Analysis (CDA).
Abstract:
The mythical worldviews of many people in Africa about Autism Spectrum Disorder (ASD) have been employed for several decades to explain the bases of ASD with little or no knowledge about the neuroncognitive and psycholinguistic underlying factors that are largely responsible for linguistic, communicative and behavioural dysfunctions noticeable in children with ASD. However, from neurobiological, cognitive and psycholinguistic points of views, scientific evidences have shown some multilayer and interrelated issues composed of how bi/ multilingualism is produced, acquired, and developed; how brains enable human languages possible, the significance of brain in human language processing as well as neural computation during bi/ multilingual tasks such as speaking, reading and writing among typically developing and autistic children. The study employs content analysis and experimental methods to discuss the primal focus of this investigation as both could adequately describe and exemplify how Nuerolinguistics and Psycholinguistics offer evidence on underlying linguistic phenomena of autism. While the content analysis foregrounds and aids understanding the notable African worldviews on autism; the experimental method offers clinical and therapeutic evaluation and interventions for bi/multilingual autistic children in the continent. The study will sample 20 bi/ multilingual autistic and non-autistic children in selected South African specialized schools. The findings will further contribute to the debates, and create plausible awareness on ASD by providing scientific descriptions to counter diverse myths and other contrary notions commonly associated with bi/ multilingual autistic children in Africa.
Ioannis Voskopoulos
Tna Space Clinic, Greece
Title: Teaching Social Media Skills to Teens and Adults On The Autism Spectrum
Biography:
Mr Voskopoulos Ioannis is a psychologist (Bsc Hons in Psychology University of Northumbria at Newcastle, Pgdip Social and Organisational Psychology) and owner of the TNA Space clinic for Teens and Adults on the Autism Spectrum. For the past 11 years, he is working with teens and adults on the Autism Spectrum and have participated to a numerous of conferences as a guest speaker in Greece and other European countries
Abstract:
By the term «Social Media Network» we mean the media in which groups of people interact with each other via network communities. The most popular of the kind are Facebook, twitter, youtube, Linkedin and others. The Social Media Network can make the social circumstances less threatening, as they eliminate as well as diversify most of the social communication rules, they facilitate the topic selection of the conversations, they provide sentimental support, they are a source of constant updated info concerning the trends of the culture of the youth.
The term that we will focus on in this speech is the adjective “social”. As it happens with the intervention associated with the social skills in the real world, an intervention plan is respectively needed in order to include the setting of targets in connection to the social skills in the virtual world. By emphasizing in the social transaction and the social rules of the digital society as well as the safe use of the media, the aim of this speech is to incorporate the already familiar cognitive and effective techniques (e.g. Social Stories) in this new world. During the presentation we will analyze case reports from real incidents and there will be a presentation of the intervention techniques.
Anna Chinyama
Kyle Preparatory School, Masvingo, Zimbabwe
Title: Inclusive learning and intervention for learners with autism [ILILA]
Biography:
Anna Chinyama attained a certificate for teaching in Preparatory Schools at The University of Zimbabwe. She also attained a degree in Educational Administration at the same University.. Her quest to help children with learning difficulties led her to train as an Educational Therapist with National Institute for Learning Development (NILD) South Africa.. She later became a Dyslexia Therapist after studying at the International Open Academy U.K. At the same time, She also studied for a certificate in Autism Awareness. She attended " Hands On Autism" courses with Autism South Africa (ASA). Anna is currently teaching Autistic Learners at Kyle Preparatory School in Zimbabwe. She also conducts Educational Therapy and Dyslexia Therapy Sessions in the school, as well as to other members of the community in need of her help.
Abstract:
ILILA is Inclusive Learning and Intervention for Learners with Autism. It is an educational programme whereby the learning and intervention processes for learners with Autism Spectrum Disorder takes place while they are among other children of their age range who are non-autistic. ILILA is an idea that generated from a situation when Autistic children had been brought up in a community where the population had very little knowledge about autism. The small town of Masvingo had no centres where these children could get Intervention. It was the plight of the desperate parents who approached the school and the teacher for help, that led to the creation of ILILA
ILILA is a collaborative effort between the school, Clinical Psychologists and the parents, to provide effective, practical and experiential intervention in the education of learners with ASD among other non-autistic learners and not in isolation. Intervention is based on the principles of programmes, theories and philosophies of education. It is also based on a combination of ASD approaches that are Internationally accepted as best practice for ASD intervention. Approaches include -1 Observations:- Covert, Overt, Participant, Non- participant and Contextual observations. 2-Interviews;- Interviews are done to collect valuable information from parents and caregivers. 3- Visual over verbal is also done 4- The Makaton communication programme to enhance communication. More approaches can be applied as the learners become more developed.
- Poster Presentations
Session Introduction
Tramy Nguyen
Ross S. Sterling High School, USA
Title: Understanding stigma associated with Autism Spectrum Disorder in the older Filipino community: A case study
Biography:
Tramy Nguyen is currently a junior at Ross S. Sterling High School in Baytown, Texas, as well as a Jack Kent Cooke Young Scholar. She attended the Research Mentorship Program at the University of California, Santa Barbara, with a full scholarship from both the Research Mentorship Program and the Jack Kent Cooke Foundation. During the course of the six-week program, Tramy conducted research and shadowed clinical work at the Koegel Autism Center under the guidance of her mentor, Anthony Osuna. She produced a paper, poster, and presentation regarding her research into stigma.
Abstract:
In the United States, there is a major disparity between White and minority families regarding autism spectrum disorder (ASD) identification and diagnosis. Children from minority families tend to receive ASD diagnoses at later ages than those from White families. Potential barriers to the identification of autism within underrepresented communities may include stigma regarding autism that is especially prevalent within the older generations of these communities. It is important to understand the conceptualizations held by the older generations because these perspectives will offer insight into the unique challenges that ethnic minority families experience with having a child with an autism diagnosis. The purpose of this descriptive case study is to thematically analyze qualitative data from an interview in order to explore the experiences of the interviewee with stigma that she encountered from the older Filipino community. Stigma was utilized as a code, a theme, as well as a central topic within the study. The results indicate that the stigma experienced by the interviewee was related to the themes of cultural and generational differences. However, it is imperative to note that the interviewee’s expereinces are unique to her, and they may also be the result of cultural blending. Future studies may expand on this study by including multiple participants in order to understand stigma within these underrepresented ethnic minority communities.
Kimberly Frazier
University of Arkansas, USA
Title: Over-imitation in older children with High-Functioning Autism
Biography:
Kimberly Frazier, PhD., CCC-SLP is an Associate Professor at the University of Arkansas. She is a frequent presenter at local, state, national, and international conferences and presents on a wide-variety of topics related to improving the communication abilities of children with disabilities across the lifespan.
Abstract:
Over-imitation is defined as the disposition to copy clearly unnecessary actions while learning a new task. It is seen in both adults and in children, and is thought to be at least partly attributed to underlying social factors, such as a drive to conform to peers or to “bond” with the demonstrator during learning. Because of these social aspects, one would expect for children with autism spectrum disorder (ASD) to over-imitate less often than typically developing children; however, in previous studies it has been found that these children over-imitate just as much or only moderately less. The purpose of this research was to collect more data regarding older children’s tendencies to over-imitate and to compare these results to a previous study conducted on a younger age group. To achieve this, ten typically developing children and ten children with ASD between the ages eight and twelve years old were recruited to participate in a one time, thirty-minute test. The test will involve two boxes, one opaque and one transparent, with prizes stashed inside. Following trials, results were analyzed by counting how many children over-imitated during their turn of the clear box trial. Data were evaluated via chi-square statistical analysis test. Results will be discussed in terms of how professionals such as speech-language pathologists can give children with ASD a greater chance of success by choosing methods or interventions that target this engagement.
Kimberly Frazier
University of Arkansas, USA
Title: Deception and Theory of Mind in Typically developing children and children with autism
Biography:
Kimberly Frazier, PhD., CCC-SLP is an Associate Professor at the University of Arkansas. She is a frequent presenter at local, state, national, and international conferences and presents on a wide-variety of topics related to improving the communication abilities of children with disabilities across the lifespan.
Abstract:
Theory of Mind (ToM) centers on one’s ability to understand another person’s beliefs, knowledge, emotions, and intentions. Additionally, it involves an individual assuming the existence of mental states and then using that assumption to justify, explain, and calculate another person's behavior (Baron-Cohen, 1989). This understanding is then used to navigate social situations appropriately. The recognition of others’ own thoughts as a result of ToM is typically seen around the age of four (Sussman, 2006); however, in children diagnosed with autism, this may not develop until much later. This cognitive delay leads to social impairment, which is a key characteristic of autism spectrum disorders. ToM goes hand in hand with deception and false belief, which are also difficult for children with autism to grasp. This impairment of deception and false belief comprehension is the basis of this research. The study involved typically developing children and children with autism between the ages of nine and ten and a developmentally appropriate board game.
This study aims to provide insight to deception and false belief tasks with children with autism. The information gained from this study will offer students and professionals interested in this field a better understanding as to how to administer pragmatic therapies to children with autism spectrum disorder.
Ruwida Al.atawi
Tabuk University, Saudi Arabia
Title: The effectiveness of the childhood autism rating scale. second edition (CARS 2), in assessing and diagnosing autism cases in a Saudi Sample
Biography:
Dr.Ruwida Al.atawi is a faculty member in the department of special education , faculty of education and arts in tabouk university of Jordan in 2013 . I got an assistant in 2018 and I have 6 scientific journals . I currently the vice dean of the faculty of business administration at tabouk university , kingdom of Saudi Arabia .
Abstract:
The Purpose of this study was to develop the Saudi Version of the Childhood Autism Rating Scale-Second Edition (CARS 2). The original scale was translated to the Arabic language. The Saudi version of the scale was administered to a total of (170) individuals served as a sample of the study. The sample consisted of (62) individuals with autism disorder, (54) individuals with mental retardation and (54) individuals without any disabilities, in the age groups from (2-6, 7-10 and from 11-14 an more). Validity and reliability coefficient were calculated.
The result of the validity showed that the scale has content validity indicators by its development and translation, discriminate validity by discriminating between the three different groups: individuals with autism, mental retardation, and non disabilities. Construct validity was calculated for the scale using the correlation between the performances regarding the Childhood Autism Rating Scale (CARS 2) and statement of the Saudi from of (Autism Behavior Checklist, ABC) (n=30) where the total correlation coefficient was (0,62).
The results of the reliability using the agreement among raters (n=30) showed that the scale has inter-rater reliability (0,93).. while the internal consistency approach by using the method of Cronbach Alpha (n=170), the correlation value of the total degree was (0.96), and the dimensions reliability coefficients ranged between (0.88-0.96), and by using Raters Agreement Procedure (n = 30), the reliability coefficient of the total degree was (0.96) and the dimensions reliability coefficients ranged between (0.87-0.94). The study then suggested further study on the scale.
- Workshop
Session Introduction
Sreenath Jagannathan
Lake Erie College of Osteopathic Medicine, USA
Title: Mindfulness, Meditation, and Yoga’s impact on significantly reducing lifelong suffering of those born with autism along with society not misunderstanding intent due to latently unprocessed mental health comorbidities
Biography:
Dr. Sreenath Jagannathan completed his Doctor of Osteopathic Medicine Degree at Lake Erie College of Osteopathic Medicine United States between July 2013-July 2017. Through access to mindfulness, meditation, and yoga resources such as the global Art of Living Sudarshana Kriya practice, he is looking for opportunity in medical residency or research. He was noted to be a big inspiration for his residency program for everyone born with autism.
Abstract:
How do we define normal neurologic processing of understanding human society’s values on how respect and success is earned or lost? What do people with autism have that causes them to be viewed very differently to the point people harshly punishingly judge their intentions in behavioral responsibility? A first-hand lifelong account with undiagnosed Asperger’s Syndrome until medical school reveals many deficiencies in institutional systems in how autism is viewed as a disability. Even experienced medical, behavioral, and mental health care professional provider systems do not understand why autism is a disability that cannot be compared with any other disability or disorder. People with autism have varying degrees of disability along with ability. Autism is a difficult diagnosis to understand because neurodevelopmental cognitive programing differences do not cause people to be intentionally bad or not wanting respect to be earned based off of strict rules by society. Mindblindness means a person is very limited in learning behavior/cognitive functioning values through observation. It is complicated to decipher warning signs that one is very limited in being able to understand normal human social-emotional intent plus expectations for conversational contexts other than the fact that people with autism rely on factual written logical structure to understand why unspoken social rules exist. Outside of a school classroom setting where social interactions are structured, real-life social interactions regarding friendship rules being different than parents, authority, and work are severely debilitating because there is no logic as so to why unspoken rules based off of observation exist. Observations do not provide the basis for why rules “logically exist or don’t exist”. Mental health is undertreated and underdiagnosed in people with autism because it is a struggle to identify internal pathological processing neurotypicals are observationally able to mindfully identify and then not act upon them. Yoga, Mindfulness, and Meditation must be a part of identifying and diagnosing mental health along with classification of how “severely someone is suffering because of autism”. Autism can be relatively negligbly causing suffering in one structured social setting, but is extremely noticeable in high stress people social relationship workplaces such group team work business jobs, customer service industries, and most importantly “first responder security social service industries” such as military, police, mental health, and patient-care institutional school/work settings
- Session on: Autistic Disorders | Autism Tests | Autism Treatment | High Functioning Autism
Session Introduction
Lorene Amet
Autism Treatment Plus, UK
Title: Childhood autism: Immunological and infectious aetiologies of the disorder
Biography:
Abstract:
Autism is a mosaic disease, it presents in different shapes and colours. Previously thought to be a rare genetic disorder, it has over the last two decades become increasingly prevalent, affecting between 1 in 38 and 1 in 100 children, depending on the geographical location. Identifying the environmental and genetic factors at play is essential to develop effective remedial and preventive intervention strategies. The condition is commonly associated with a range of health problems with the most commonly encountered affecting the immune and digestive systems as well as metabolism, including methylation and sulfuration pathways. These can be identified through appropriate biomedical testing and clinical investigations. Treating these abnormalities can lead to significant improvements in the child’s health, development, social communication skills and behaviour. The presentation will provide an update of the current state of scientific and medical understanding of the condition, and present the range of clinical evidence in support of a convincing paradigm to explain the pathologies and developmental features of the condition.
Biography:
Dr Meguid is a professor of human genetics and Former Head of Human Genetics Unit, National Research Center (NRC) in Egypt. She holds a Ph.D. in Human Genetics, and she is a Senior Geneticist at the Genetics Institute, Pasadena, California; a fellow of Uppsala University, Sweden and Yale Universities. She was one of five selected scientists to win the outstanding L’Oreal UNESCO Award for women in Science for Africa & Middle East (2002). Awarded with the National State Award of Excellence in Advanced Medical science Technology, 2016. She is the head of the laboratory of research in DNA in genetic behavioral disorders and Founder of autism research study. Jury president L’OREAL-UNESCO Awards. Supervised 50 theses. Has 70 International publications.
Abstract:
ASD develops through a complex set of etiologies that involve environmental, genetic, and immunological factors. The subjectivity of behavioral diagnosis urges the need for biomarker clinical tests to improve and complement ASD diagnosis. A wide range of biomarkers to diagnose and indicate the severity of ASD include metabolic and genetic biomarkers. The role of oxidative stress in the etiology of an ASD diagnosis, including increased lipid peroxidation, altered antioxidant enzymes in plasma, mitochondrial dysfunction, and the genetic factors; recently reported,as tracking biomarkers will be discussed. However, it is still premature to consider these genetic variants as true biomarkers for ASD, due to their regional-specific nature. The panel addresses two principle categories; molecular with recent gene discoveries and analyze the transcriptional profile of genes involved in the oxidative stress pathway in autism, in addition to relationship between oxidative stress related blood, urine and nutritional biomarkers. Herein, we will comprehensively review the biomarkers reported in ASD in addition to our own experience. It is important to establish those biomarkers resulting able to help diagnosis and optimize the treatment of ASD.
Biography:
Feliciea Jibson is an Educational Consultant, member of Society of Education Consultants UK, qualified Teacher with years of experience in teaching autistic children in schools, residential settings, and working directly with parents, carers and families. She has has completed her Masters degree in Autism at University of Birmingham. Before opening Felser Limited in 2018 Felicia worked for 4 years as a Head of Department for learners of 16 to 25 years old with severe learning difficulties and complex needs.
Abstract:
Profiling and Goal Setting Assessments (PAGS ): PAGS has been developed for children and young adults between the ages of 5 and 25 who have a mild/moderate learning difficulties, autism, social communication difficulty, pervasive developmental disorder (PDD); conduct disorder, attachment disorder, global developmental delay, mental health difficulties. It is a unique framework based on the concept that children and young people should be assessed developmentally so that it is possible to look at the areas of skill deficit they have as a result of either their schooling or their autism / learning support needs. It is a skills-based assessment, looking at functional areas so that the child is supported in life. PAGS promotes a ‘can do’ approach, recognises the uniqueness of each learner and provides the goal setting information for personalized learning progress.The assessment produces a summary of the learner’s strengths and guides to the skills that will need to be developed. The basis for PAGS is linked to cognitive theories of development, from infancy to adulthood, considered in relation to the impact of autism spectrum condition and related neurological conditions on individuals' memories and capacity for learning and generalising. An important bibliography has been researched and applyed into practice, equally listening to and consulting with learners and their families. PAGS Assessments framework is substantially different from the comparatively prescribed options offered by the assessment systems that are used currently. Enables practitioners to facilitate bridging between individuals' skillsets in different settings, be it at school, at home or within the wider community. PAGS has been developed to work alongside any academic curriculum. PAGS is being trialled in a specialist school for children with autism and also with selected individuals. A software programme will be launched early next year and updated regularly.
Biography:
Dr. Alok Sharma is the Director of NeuroGen Brain & Spine Institute, Professor & Head of Department of Neurosurgery, LTMG Hospital & LTM Medical College and Consultant Neurosurgeon at Fortis hospital, Mumbai. He completed MS and M.Ch. from Seth G.S. Medical College and KEM Hospital, Mumbai and subsequently trained at the Karolinska Hospital, Stockholm, Sweden & University of Colorado Health Sciences Center, Denver, USA. He has published 137 scientific papers, authored 16 books, edited 1 book, contributed chapters in 18 books and made over 150 scientific presentations nationally and internationally. He is Founding President of the “Stem Cell Society (India)” and Vice President of International Association of Neurorestoratology (IANR). He is Founder of “The Indian Journal of Stem Cell Therapy”. He has been conferred with numerous awards and honors during his career. He has extensively researched the pathophysiology of various neurodevelopmental disorders and evolved a comprehensive treatment options for the disorders like Autism, Cerebral Palsy and Intellectual disability. He has pioneered the concept of stem cell therapy for incurable neurological disorders. His other areas of special interest are Neuroendoscopy, Psychosurgery, Spinal fixations & Revascularization for cerebral ischemia.
Abstract:
Autism spectrum disorder (ASD), a group of neurodevelopmental disorders, is characterized by abnormal development of brain function and connectivity. Routine magnetic resonance imaging studies have shown some volumetric changes, but inconsistently. Functional neuroimaging modalities have suggested abnormal brain function. We studied the brain function, using [18F] 2 fluro 2 deoxy D glucose FDG Positron emission tomography – computed tomography scan, of 45 children diagnosed with ASD on the basis of DSM IV – TR criteria. It was found that children with ASD showed hypometabolism in specific regions of brain, such as, amygdala, hippocampus, parahippocampal gyrus, caudate nucleus, cerebellum, mesial temporal lobe, thalamus, superior and middle temporal pole, and higher metabolic uptake in calcarine fissure and Heschl’s gyrus. The data obtained from them was compared to the previously published data of neurotypical children. The findings suggested that as compared to the control data, median SUVs in children with ASD decreased linearly as the age progressed. These findings suggest that selective, progressive hypometabolism in specific brain region could be a pathophysiological mechanism in ASD.
Biography:
Clare Melvin, MSc, DipPsych, BA (Hons), is completing her PhD at the Tizard Centre, University of Kent, exploring sexual offending behaviours in individuals with autism spectrum conditions. Clare’s research interests focus on adults and children with IDD detained under the Mental Health Act, particularly the therapeutic treatment of offending behaviours. Clare has clinical experience in this area and, in addition to her PhD, works at Hertfordshire Partnership NHS Foundation Trust on research involving individuals with IDD who display offending behaviours. Clare also works as an Associate Consultant for the British Institute of Learning Disabilities and delivers teaching at the University.
Abstract:
Aims: There is some evidence to suggest poorer treatment outcomes for offenders with autism spectrum conditions (ASC). The cognitive profile associated with ASC, including difficulties with social interaction and communication, deficits in theory of mind and empathy, inflexible thinking styles and special interests, may present barriers to treatment for sexual offending and create challenges working with offenders with ASC. This study investigated the use of adapted sex offender treatment programmes (SOTPs) for individuals with ASC.
Method: Semi-structured interviews were conducted with group facilitators (n=12) and male services users with ASC (n=13). Interviews with the men explored their experiences of attending a group and views of sexual risk since treatment. Clinician interviews focused on engagement and response to core treatment components e.g. victim empathy, cognitive distortions, etc., and any differences to non-autistic offenders.
Results: Grounded Theory was used to conceptualise treatment outcomes and future sexual risk. For service users, this was framed by their understanding of the group’s purpose, perceptions of their behaviour, and beliefs about change following treatment. For the clinicians, clear benefits were identified, including: presence of other group members, a forum to develop pro-social roles/relationships, and increased opportunity for monitoring. Challenges regarding empathy, specifically emotional empathy, and shifts in cognitive distortions were felt to be particularly pertinent to those with ASC, as well as questions over internalisation of therapy.
Conclusion: Despite identification of a number of challenges, adapted SOTPs were considered beneficial by both men with ASC and clinicians, especially in light of a dearth of evidenced-based alternatives.
Rati Kapoor
Asian Heart Institute, India
Title: Challenges, coping strategy, and quality of life of the parents having children with ASD in Mumbai, India
Biography:
I am currently working as a Statistician in Asian Heart Institute & I have completed my M.Phil. In Bio-Statistics & Demography. Also I have four month experience in working as statistician at govt. Medical College and hospitals, Chandigarh under ICMR project.
Abstract:
Background: Autism spectrum disorder (ASD) is a neurological and developmental disability that can cause significant social, communication andbehavioral challenges. The actual number of children with autism in India is unclear,and there is no evidence of the quality of life of the parents with ASD children. This study aimed to describe the challenges, coping strategy, and quality of life of the parents having children with ASD in Mumbai, India.
Materials and Methods: A qualitative approach using grounded theory has been adopted to explore the challenges, coping strategy, and quality of life. Ten in-depth interviews were carried out with parents of children with ASD. Qualitative content analysis has been carried out through N.ViVo software.
Results and Conclusion: Emotional distress is a major impact on parents. Parents struggle with managing various relationships with spouses, other children, and extended family members due to the increased attention required for their child. Social isolation and community intolerance are experienced by parents,and there isa problem of negotiating public encounters. Parents perceive very few doctors identify autism properly and suggest modalities to address it.
Biography:
Joanne Cheung completed her BSc in Psychology at Bristol University UK and her MSc at King’s College London. She is a research fellow at the Institute of Psychiatry, Psychology & Neuroscience and is researching psychopathology in Tuberous Sclerosis Complex.
Abstract:
Tuberous Sclerosis Complex (TSC) is a genetic disorder caused by mutations in the TSC1 or TSC2 genes. It is not known if the risk for ASD or ADHD is increased in both TSC1 or TSC2 mutations. This study aims to determine the prevalence of ASD and ADHD based on mutation type (TSC1 or TSC2 gene). The TS2000 study is a population based, longitudinal study of the natural history of TSC. 125 children diagnosed with TS were recruited. And followed up at several time points. ASD and ADHD were assessed using standardised and semi-standardised measures. Of the 125 participants, 19 had TSC1 mutations and 77 had TSC2 mutations. 42.9% of patients with TSC2 mutation met stringent diagnostic criteria for ASD, 24.5% met criteria for probable ASD and 12.2% for more broadly defined ASD. Amongst patients with TSC1 mutations, 25% met stringent diagnostic criteria for ASD, 37.5% probable ASD and 18.8% met criteria for more broadly defined ASD. The difference between TSC1 & TSC2 was not significant: p= 0.77. In TSC1 cases, definite ADHD was diagnosed in 27.3% and probable ADHD was present in 9.1%. Amongst TSC2 cases, 20.8%. had definite ADHD and 22.9% probable ADHD. The difference between TSC1 & TSC2 was not significant: p=0.70. Mutations in both the TSC1 and TSC2 genes are associated with an increased risk of ASD and ADHD compared to the general population, but in this small sample, the prevalence of ASD and ADHD in TSC1 and TSC2 cases was not significantly different.
Jennifer Palmiotto
Alliant International University, USA
Title: A qualitative content analysis of parent-child interactions in autism within RDI
Biography:
Jenny Palmiotto, Psy. D., LMFT is the CEO and clinical director of The Family Guidance & Therapy Center which provides services in Southern California and Central Texas. She is the founder of Love & Autism; a social change movement and national conference where autistic people are positioned as leaders. As a clinician, Jenny is driven by her values of authenticity, adventure, and belonging. She wholeheartedly invites joy into each therapy session using family-focused, relational methods such as Relationship Development Intervention (RDI), Emotionally Focused Therapy (EFT), Movement Method (MM), and The Daring Way. With seventeen years of experience, she brings a depth of understanding and compassion to autistic people and their families. Its more important than ever to grow loving-kindness in our families, homes, and communities; Jenny enjoys helping people do just that.
Abstract:
This study aimed to improve understanding of interactions between parent-child with autism within two domains central to autism; intersubjectivity and social regulation. In this qualitative study, the researcher examined the Relationship Development Assessment-Adapted (RDA-RV) Coding Scales, a novel observational measure used to assess the quality of interactions between parent and child with autism, within the context of Relationship Development Intervention (RDI) treatment and pretreatment. The researcher used qualitative content analysis to describe each of the subcategories of the RDA-RV Coding Scales within the two main categories--Intersubjective Engagement States and Interactive Regulation States. Eleven parent-child dyads participated by providing short video recordings of parent-child interactions in RDI guiding engagements and a pretreatment video. With review of textual transcriptions and video, the researcher’s findings included three themes that were tracked in each of the four predetermined subcategories of the Intersubjective Engagement States. The themes found were: (a) quality of affective connection/relatedness, (b) quality of communication, and (c) quality of gaze. In addition, within the four predetermined subcategories of Interactive Regulation States, three unique themes emerged: (a) quality of monitoring and aligning (b) dynamic-ness (c) complexity of the share endeavor. The researcher deconstructed each theme into subthemes distinguishing each subcategory as a different and distinct levels of interaction that also related to the respective main category. The researcher formulated the findings into a codebook to increase clinical and research utility of the RDA-RV Coding Scales. The results may directly influence the assessment and ongoing treatment of developmental-relational approaches, namely RDI, by increasing the usability of the RDA-RV Coding Scales.
Biography:
Alicia Trautwein is an Autism Parenting Blogger and Influencer based in St. Louis, MO USA. She is the creator behind TheMomKind.com, an autism parenting website that was awarded one of the Top 30 Autism Parenting Blogs of 2018. She is featured in the book, Amazing Moms of the 21st Century by Hogan Hilling and is and life long advocate for Autism Awarenss and Acceptance.
Abstract:
With rates being 1 in 59 children in the United States being diagnosed with Autism, there is a real need for positive autism parenting advice. With the common use of social media and electronics by both autistic childed and adults, as well as the parents there of, a new world of information hasd come about. Social media and blogs are becoming the go to resource for parents in all categories, especially in the autism parenting realm.
In the last the last two years, there has been a movement of autistic parents becoming social influencers. As one of those influencers, I have been able to reach parents that would not otherwise have any support. Many parents of autistic children through out the world do not have a support system and also lack the insurance to see therapist for even the simpliest of questions.
Parents of autistic children struggle greatly with finding similar parents to connect with. Prior to social media, this left many parents feeling completely isolated. By embracing social media, infulencers are able to help connect with parents and to help connect communities of parents together. Sharing day to day life, stories, and advice online helps connect these parents in ways that other wise might be impossible.
In this discusion, we will be covering the common questions parents are asking, the use of social media to support parents, autistic children, and adults, as well as the roles that social influencers are taking in the online autism parenting realm.
Hideki Kozima
Tohoku University, Japan
Title: Granularity in brains and cognition: Toward a unified model of ASD
Biography:
Hideki Kozima completed his Ph.D in computer science from the University of Electro Communications (Tokyo, Japan) in 1994, then he joined National Institute of Information and Communications Technology (Tokyo/Kyoto, Japan) as a researcher and senior researcher, where he developed “Keepon”, a therapeutic robot for autism. In 2008, he joined Miyagi University (Miyagi, Japan) as a full professor at School of Project Design, and appointed as a vice president in 2013. In 2017, he joined Tohoku University (Miyagi, Japan) as a full professor of Graduate School of Educational Informatics, and in 2018 as a full professor of Graduate School of Education.
Abstract:
ASD exhibits a wide spectrum of behavioral symptoms. A number of researchers have tried to find a unified model behind the phenotypical diversity; however, any plausible model that well-explains that diversity has not yet proposed. We here describe our on-going attempt at modeling ASD in a unified way from the viewpoint of “cognitive granularity”.
Cognitive granularity represents the size of the basic elements that are operable in one’s cognitive system. In other words, it represents the size of semantic units (schema, basic level categories, etc.) to articulate and recognize the environment. While it is constrained by one’s perceptual and motor resolution, cognitive granularity determines the level of abstraction at which one can efficiently predict and control the physical and social world.
From anatomical studies of ASD brains, Casanova reported that mini-columns in ASD brains have higher density than that of TD. A mini-column is a columnar structure with approximately 100 neurons that align vertically in the cerebral cortex. Mini-columns are considered to be the smallest functional unit of the brain. Higher density of mini-columns in ASD suggests that an ASD brain employs a larger number of mini-columns in information processing. It also suggests that ASD brains process information in less integrated way because the smaller mini-columns reduce long-distance connection between them.
The characteristic granularity and connectivity in ASD brains explain the information processing styles of ASD population. ASD people acquire linguistic categories with finer and specific distinction. ASD people have difficulties in integrating information that are represented by distantly distributed mini-columns, resulting in the failure of sensory integration, motor coordination, or acquiring “central coherence”. Finer granularity in ASD also explains their difficulties in mentalizing other’s behavior: a variation of human goal-directed actions would look like arbitrary causal sequences of micro-actions without shared invariants, namely, “intentions”. This suggests that “theory of mind” or “mentalization” would be based on the shared “coarser” cognitive granularity, which enables TD people to see the mental gestalt in other’s physical behavior.
- Session on: Sensory Integration in Autism | Autism Associated Syndromes | Emotion Regulation in Autism | Autism Associated Disorders
Session Introduction
Gary W. Lavigna
Institute for Applied Behavior Analysis, USA
Title: Preventing the need for restrictive practices through the use of nonaversive reactive strategies for rapid, safe situational management
Biography:
Dr. LaVigna received his Ph.D. from the University of Chicago and has worked in the field of Autism since 1971. He has served on the Professional Advisory Board of the Autism Society of America since 1978. He Co-founded the Institute for Applied Behavior Analysis (IABA) in 1981, which currently serves over 600 children, adolescents and adults. He has published 4 books on the topic of Positive Behavior Supports and more than 40 journal articles and book chapters. He has also served as guest editor for special editions of two respected journals.
Abstract:
Will be updated shortlyBehaviors of concern are those that can put the person or others at risk. This can lead to restrictive practices aimed at keeping people safe, which themselves can lead to harm, scandal and a decreased quality of life. Positive Behavior Support (PBS) holds a surprising solution to this dilemma. When a behavior of concern occurs, the immediate objective of the reactive strategy used should be behavioral "resolution", i.e., rapid, safe situational management. The quantified measure of "episodic severity" should be used to evaluate this outcome. Rather than using a restrictive procedure, research has provided a host of evidenced based non-aversive reactive strategies (NARS) that can lead to "resolution." These include, among others, active listening, redirection to an alternative, even preferred activity and stimulus change. These NARS have been shown to be more effective than the restrictive procedures in reducing episodic severity and in keeping people safe. The elephant in the room is the overwhelming but unacknowledged body of research literature that has identified a NARS that is superior to all other strategies, including both the other NARS and restrictive practices. That is, it consistently achieves rapid, safe situational management and dramatically reduces the episodic severity of the behavior. The elephant sitting behind the elephant in the room is the overwhelming but unacknowledged body of research literature that establishes that this remarkably effective NARS can be used without any negative side effects. Government and agency policy should require the full use of NARS before the use of restrictive practices is allowed.
Behaviors of concern are those that can put the person or others at risk. This can lead to restrictive practices aimed at keeping people safe, which themselves can lead to harm, scandal and a decreased quality of life. Positive Behavior Support (PBS) holds a surprising solution to this dilemma. When a behavior of concern occurs, the immediate objective of the reactive strategy used should be behavioral "resolution", i.e., rapid, safe situational management. The quantified measure of "episodic severity" should be used to evaluate this outcome. Rather than using a restrictive procedure, research has provided a host of evidenced based non-aversive reactive strategies (NARS) that can lead to "resolution." These include, among others, active listening, redirection to an alternative, even preferred activity and stimulus change. These NARS have been shown to be more effective than the restrictive procedures in reducing episodic severity and in keeping people safe. The elephant in the room is the overwhelming but unacknowledged body of research literature that has identified a NARS that is superior to all other strategies, including both the other NARS and restrictive practices. That is, it consistently achieves rapid, safe situational management and dramatically reduces the episodic severity of the behavior. The elephant sitting behind the elephant in the room is the overwhelming but unacknowledged body of research literature that establishes that this remarkably effective NARS can be used without any negative side effects. Government and agency policy should require the full use of NARS before the use of restrictive practices is allowed.
Behaviors of concern are those that can put the person or others at risk. This can lead to restrictive practices aimed at keeping people safe, which themselves can lead to harm, scandal and a decreased quality of life. Positive Behavior Support (PBS) holds a surprising solution to this dilemma. When a behavior of concern occurs, the immediate objective of the reactive strategy used should be behavioral "resolution", i.e., rapid, safe situational management. The quantified measure of "episodic severity" should be used to evaluate this outcome. Rather than using a restrictive procedure, research has provided a host of evidenced based non-aversive reactive strategies (NARS) that can lead to "resolution." These include, among others, active listening, redirection to an alternative, even preferred activity and stimulus change. These NARS have been shown to be more effective than the restrictive procedures in reducing episodic severity and in keeping people safe. The elephant in the room is the overwhelming but unacknowledged body of research literature that has identified a NARS that is superior to all other strategies, including both the other NARS and restrictive practices. That is, it consistently achieves rapid, safe situational management and dramatically reduces the episodic severity of the behavior. The elephant sitting behind the elephant in the room is the overwhelming but unacknowledged body of research literature that establishes that this remarkably effective NARS can be used without any negative side effects. Government and agency policy should require the full use of NARS before the use of restrictive practices is allowed.
Jonathan Jervis
Bermuda Hospitals Board, Bermuda
Title: The role of school break day camps in diagnosis, and management of ASD and ADHD: The Bermuda experience
Biography:
Jonathan completed his undergrad and graduate degrees at Andrews University earning a BSW and MSW focused in clinical social work. Jonathan is an experienced therapist with a demonstrated history of working in the hospital, community and health care industry. He has earned certification as a family therapist and passed the masters level licensure examination set for social workers by the Association of Social Work Boards. Jonathan is now functioning as the Experiential Therapist on the CAS multidisciplinary team where he has been working since returning home to Bermuda in December 2015.
Abstract:
Bermuda’s Child and Adolescent Services (CAS) annually receives many requests for its therapeutic summer camp. This Intervention is predominantly reserved for young children who present with traits primarily consistent with a neurodevelopmental disorder, disruptive, impulse-control and conduct disorders that subsequently exclude them from mainstream summer camp programs offered in Bermuda. In recent years CAS summer camp has largely been used to assist in the process of differential diagnosis using a multidisciplinary team approach to rule out ADHD and ASD. To maximize the benefits of participation in such a service, individual referrals are short listed based on criteria set by the clinical team. Age, presenting traits, gender, working diagnosis and overall group size are all considered ensuring there is an appropriate peer group for the summer experience, consequently maximizing benefits and minimizing risk to participants. Daily observations by clinical staff, individual assessments, individual interactions, daily parent feedback, treatment plan guided interventions and daily review of each participant provides a comprehensive approach toward each service user. Over the years there have been high rates of service users diagnosed with ADHD and ASD. Camp referrals although similar in nature often involve varied symptom presentations making ruling out disorders a multifaceted process. Traditionally diagnosis of ADHD and ASD are made through questionnaire and snap shot interactions with trained clinicians. Utilization of the CAS therapeutic summer camp gives clinicians the opportunity to observe, interact and manage service users over a period of time providing more information and minimizing the likely hood of misdiagnosing.
Evangelos Kavakis
Aristotle University of Thessaloniki, Greece
Title: Parental interpretations of autism: A Greek Perspective
Biography:
Evangelos Kavakis has completed his Master’s Degree in Special Educational Needs at USW Newport City Campus with a keen interest in the field of Autism Spectrum. He has a Bachelor’s Degree in Philosophy and Education (Honors) from Aristotle University of Thessaloniki. He is currently working as a Teaching Assistant in a primary school for children aged 3-11 years old, who are on the spectrum of autism, in Cardiff.
Abstract:
Parental Interpretations of Autism: A Greek Perspective: The aim of this research project was to have a better understanding of the perception and life experiences of rural Greek parents raising children on the spectrum of autism. For this reason, a qualitative research has been adopted through qualitative semi-structured individual interviews. Parents from 7 families of children with autism, aged between ten and fifteen years old residing in a northern Greek province shared their personal story. The data were analyzed using qualitative software (NVivo) and themes began to emerge. Four themes representing the essential challenging elements of the parents' experiences included: Parents’ understanding, impact of autism, sources of information and the support and its role in the life of parents. This qualitative exploration of parental experiences has yielded several key findings. Knowledge was added to the current literature on autism in specific areas through first-hand accounts as data and can be used in the future in a plethora of educational and not only ways.
Rati Kapoor
Asian Heart Institute, India
Title: Characteristics of children with autism spectrum disorder and perceived risk factors associated with ASD in Mumbai, India
Biography:
I am currently working as a Statistician in Asian Heart Institute & I have completed my M.Phil. In Bio-Statistics & Demography. Also I have four month experience in working as statistician at govt. Medical College and hospitals, Chandigarh under ICMR project.
Abstract:
Background: Autism Spectrum disorder (ASD) is a complex developmental disability which is fast growing in nature across the globe. There is limited empirical evidence on autism in India. The actual number of children with autism is unclear as many of the characteristics are similar to other neurological and mental disorder and not counted as ASD in India. This study aimed to describe the erceivedharacteristics of children with ASD and its risk factors in Mumbai, India.
Materials and Methods: A qualitative approach using grounded theory has been adopted to explore the perceived characteristics and risk factors associated with ASD. Twenty in-depth interviews were carried out with parents and teachers of children with ASD. Qualitative content analysis has been carried out through N.ViVo software.
Results and Conclusion: We found the major features which have been observing in kids with ASD are of social interaction and speech problem, i.e., they lack in social interaction such as eye contact, late response, and repeating words. Both teachers and parents have observed these characteristics. Anxiety and phobia are two characteristics which have been found in our study. The perceived risk factors associated with ASD are mainly genetic, and stress during pregnancy.
Lorry Chen
Holland Bloorview Kids Rehabilitation Hospital, Canada
Title: A feasibility and acceptability study of elevated protein dietary intake for children diagnosis with Autism Spectrum Disorder (ASD) while on psychotropic medication
Biography:
Lorry Chen has completed her dietetic education from Western University and has been in clinical practice for more than 25 years in a pediatric rehabilitation hospital serving children with disabilities. Addition to her clinical practice, her research interest includes exploring energy requirements, obesity and the evaluation of anthropometric parameters in children with disabilities. She has been a collaborator in several published research articles in peer review journals about obesity in children with disabilities.
Abstract:
Weight gain, which is one of the harmful effects of psychotropic medication, is likely the best understood risk factor for obesity in both children and adults with autism spectrum disorder (ASD). Data obtained from clinical and nationally representative populations of children demonstrate that approximately 30% - 60% of children with ASD are prescribed at least one psychotropic medication, and 10% are prescribed more than three medications at the same time. To date, no established treatments or preventative measures have been developed to combat psychotropic-induced weight gain (PIWG) (1). Controlled energy intake combined with elevated protein intake (CEEP), may represent an effective and practical strategy for limiting weight gain. Potential beneficial outcomes associated with protein ingestion include: a) increased satiety—protein generally increases satiety to a greater extent than carbohydrate or fat and may facilitate a reduction in energy consumption; b) increased thermogenesis—higher-protein diets are associated with an increase in thermogenesis, which also influences satiety and increase energy expenditure; and c) maintenance or growth of fat-free mass (muscle) — in some individuals, a moderately higher protein diet may provide an increase effect on muscle protein synthesis, favoring the retention of lean muscle mass while improving metabolic profile (2).
This proposed study’s primary objective is to evaluate the feasibility (study designs, methods, processes) and acceptability (client/family satisfaction, perceived effectiveness) of a controlled energy diet with elevated protein intake to combat PIWG in children with ASD who are currently taking prescribed psychotropic medication.
Brian McCann
Newpark Autism Centre, Ireland
Title: The lived experiences of autistic adults as novice martial artists: An interpretative phenomenological analysis
Biography:
Brian McCann is a doctoral candidate at the University of Dundee. He has been teaching English language and literature for over 25 years and has taught at Dublin City University, Dublin Business School, King Fahd University, Saudi Arabia, Aoyama Business School, Tokyo and is now a Special Education teacher at the Newpark Autism Centre, Dublin. He has an M.Phil. in Applied Linguistics from Trinity College, Dublin, an MBA in Educational Management from the University of Leicester and 4th Degree Black Belt in Aikido from World Headquarters, Tokyo. He regularly teaches Samurai weaponry to autistic students.
Abstract:
This study questions what it is to be an autistic adult as a novice martial artist in the practice of Aikido. It responds to a gap in the literature on martial arts as an intervention in autism and investigates the impact of martial practice on the affective domain. Four participants met with two inclusion criteria: firstly, to be between eighteen and sixty-five and secondly, to hold a clinical diagnosis of Autistic Spectrum Disorder (ASD) (DSM-5). The research was conducted using Interpretative Phenomenological Analysis (IPA). The sample engaged in an adapted Aikido course taught by officially registered black belt instructors within a formal dojo setting. Video and photo elicitation were used in the semi-structured interviews and the participants logged their experiences. Two phases of interviews followed the 12-class course. Phase Two followed between four and six months after Phase One to register any longitudinal changes. The researcher personally transcribed all interviews. IPA was selected because it combined the rigour of hermeneutics, idiography and phenomenology. Phase One revealed superordinate themes across the four transcripts revealing issues of fear, bullying, threat, protection, anxiety and safety. Phase Two revealed a significant longitudinal impact on the daily lives of the participants, ranging from a newly acquired life-world structure to an increase in peace of mind. The study contributes to the current wave of advocacy for the autistic nation and should encourage and support further research. On a pragmatic level, it may offer inspiration to martial art instructors teaching autistic adults in their classes.
Professor Damian Riviez
Dean of the Abu Dhabi School of Management, UAE
Title: An investigation in using Audio Psycho Phonology (APP) as a foundational tool in treating individuals with learning challenges
Biography:
Professor Damian Riviez, Ph.D., is the Dean of the Abu Dhabi School of Management in the UAE. His research interests include innovative platforms of human learning and development in business, communities and education. Damian has a passion for studying new applications for learning to address diversified learning challenges in human development. Professor Riviez holds a Doctorate in Educational Administration and Leadership, a Master’s of Science in Special Education, and a Graduate Certificate in Autistic Spectrum Disorder. Dr. Riviez has a child with additional learning needs.
Abstract:
The development of language, communication and literacy is at the heart of human development. The acquisition of language skills in early childhood development and the growth and retention of those skills over a lifetime, serve as the barometer for diagnosis in addressing variances of ability and use. Moreover, these skills serve as a critical value in providing tangible proof of perceptual cognitive performance, action and behavior. The purpose of this project is to investigate the use of Audio Psycho Phonology (APP) as a foundational tool for individuals with learning challenges. A literature review was conducted in determining the viability of APP as an effective intervention for those with learning difficulties. Results indicate moderate success, albeit, variable in diverse cases. Further, a discussion on a relevant case study will be presented.